Page 11 - HFA Dateline 2021 Q3 Fall
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federal unemployment benefits offered through the      apartment. He lived in a tent while trying to find a lead on
        American Rescue Plan Act expired September 4. Eviction   a new job or get approved for the Supplemental Security
        moratoriums are only in effect in a handful of states.   Income program.
        And families still have bleeds, hospitalizations, births and
        deaths, unexpected financial emergencies. The “typical”   LaToya* cares for her son who uses a wheelchair because
        emergencies are layered on to the ongoing emergency of   of joint issues. Their SNAP food benefits randomly stopped
        the pandemic. Here are a few examples of the situations   eight months ago, but she is so overwhelmed with the
        our community members face:                            health and work issues that she hasn’t been able to make
                                                               the phone calls to get the administrative issue resolved.
        Robert* and Kanti* had a
        newborn who experienced                                                        The financial need in our

        bleeding issues right after birth.                                             community is persistent. The
        Robert had to miss work to care    NEED                                        virus is relentless. The flow of
        for their other children while                                                 referrals to our programs is
        Kanti and the baby were in the                                                 continuous.
        hospital. The missed paychecks
        left them without enough           HELP?                                       I do not know how long it
        money for rent.                                                                will take for these beloved
                                                                                       community members to
        Diane’s* daughter has                                                          recover—financially and
        hemophilia A. Two family           To learn more about Helping Hands           otherwise—from the effects
        members temporarily moved          programs, visit www.hemophiliafed.          of COVID-19. All of us are still
        in with them to escape a           org/helpinghands.                           living in a pandemic while
        hurricane, adding to expenses.                                                 simultaneously trying to cope
        Then the house was infested        Visit our Patient Assistance Portal         with and heal from its impacts.
        with bedbugs and Diane could       for resources about financial
        not afford to replace her          assistance, financial planning,             What I do know is that
        daughter’s bed.                    manufacturer assistance for                 Gavin and Nieve received
                                                                                       HFA Emergency Assistance,
                                           medications, mental health and
        With diabetes and a history of     more at www.hemophiliafed.org/              COVID-19 Relief, and Disaster
        heart trouble, Shane*, who has     patientassistanceportal.                    Assistance to cope with the
        von Willebrand disease, was                                                    multifaceted emergencies
        at high risk for COVID-19. Plus,   Learn about employment rights               they faced over 18 months.
        schooling for their children       and career planning in the “Planning        All the community members
        went virtual, so they decided to   Office” on Learning Central at              in situations like the ones
        leave their job and stay home      www.hfalearning.org.                        above spoke with a Helping
        to avoid the risk of death from                                                Hands staff person who cared
        COVID-19 and help the children     For mental health resources                 about them, and all received
        with online school. As a single    and tips, see https://bit.ly/               assistance from Helping Hands
        parent, Shane needed help to       HFAMentalHealthResources or www.            in one form or another.
        pay the rent until they could      hemophiliafed.org/recursos-de-
        figure out a new plan.             salud-mental. If you are in crisis, text    Helping Hands must continue
                                                                                       to provide help, and hope, to
                                           “HOME” to 741-741 to reach a trained
        Francesca* has a rare platelet                                                 our community. We must ensure
        disorder. She cleans houses        crisis counselor.                           that funding flows to keep pace
        for a living and lost a lot of                                                 with the flow of referrals. We
        work because people did not                                                    must be relentlessly generous
        want visitors in their homes during the pandemic. She is   and persistently compassionate. 2022 will mark 25 years
        undocumented so she was not eligible for most benefits.   since the Helping Hands program began. We have stood
        Her water bill was two months overdue and at risk of   beside families who endured the HIV crisis, stock market
        disconnection.                                         and housing market crashes, hurricanes, global recessions
                                                               and now a pandemic. With your support, we will continue
        Will*, who has hemophilia B, lost his mother and       to stand with families, whatever may come.
        grandmother to COVID-19. In his depression and without
        their financial help, he lost his job, his car and his   Donate to Helping Hands at
                                                               www.hemophiliafed.org/donate.
        * Names and some details were changed to preserve anonymity.                                 FALL 2021         11
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