Page 13 - HFA Dateline 2021 Q3 Fall

Dan Liedl, at age 58, says,
“Some days my mind tells me
I feel like a teenager and my
body tells me I’m an old man.”

What he does know is that his body is never had to face before: diseases of Jersey, who has severe hemophilia
older than his years, largely because aging, such as diabetes, high blood A. Vogel is a past president of
he’s a member of the first generation pressure, cancer, joint replacements, Hemophilia Federation of America.
of men with hemophilia who are living even heart disease and organ
into their 60s, 70s and 80s. He and his transplants. And as they do, they—and “If you don’t infuse, you’re going to
peers have experienced the full gamut the health care system that treats bleed,” he said. “So you learn to be
of hemophilia treatments—whole them—are having to learn how best to compliant with your prophylaxis. I
blood transfusions, cryoprecipitate meet all of their needs. know every third day I’m going to
and every generation of replacement infuse. And I don’t miss a day because
factor out there. This means they also The good news is that everything it’s ingrained in me that this is what
have had a large number of bleeds these men are dealing with can be I’m going to do. The same is true for
and the accompanying joint damage addressed with the right medical high blood pressure medication [or
and bone density loss, often leading teams and with the help of the any other medication]. That discipline
to mobility limitations and pain. Plus, discipline that most men with is there.”
he and his generation are dealing with hemophilia learn early, said Richard
something that men with hemophilia Vogel, 65, of East Brunswick, New

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