Page 12 - HFA Dateline 2021 Q3 Fall
P. 12

We welcome the first generation of men with

                 hemophilia living into older age—and explore

                          the medical issues that come with it.



                                  BY HEATHER BOERNER, FREELANCE WRITER

        When Dan Liedl, who has severe       There’s the arthritis in his hips, ankles,   that remind him with every step
        hemophilia A, wakes up in his        knees and shoulders that tell him what   he’s not a kid anymore. It’s a weird
        Morgantown, West Virginia,           the weather is going to be like that   realization for a man who, in midlife,
        home every morning, he feels         day. There are times he has to dangle   is studying to get a PhD in medical
        fine. It’s only when he starts to    his legs over the side of the bed and   sociology.
        move that he feels every minute      slowly rotate them so that the pain
        of his 58 years. It’s an interesting   in his ankles drops from agonizing to   “Some days my mind tells me I feel
        experience for a man whose           just sore. And of course, there is the   like a teenager and my body tells
        adoptive mother was told her son     limp caused by the fused knee and    me I’m an old man,” Liedl said in a
        wouldn’t live to age 21.             the neuropathy from cancer treatment   deadpan.



















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