Update: Takeda to Voluntarily Replace Certain BAXJECT® II Reconstitution Devices
UPDATE as of 8/28/2023 Takeda, in agreement with the U.S. Food and Drug Administration (FDA), has decided to voluntarily replace BAXJECT® II reconstitution devices produced by Baxter between October 2021 and January 2022 co-packaged for use in conjunction with RECOMBINATE™ [Antihemophilic Factor (Recombinant)] and RIXUBIS® [Coagulation [Factor IX (Recombinant)]. Takeda has received reports of white […]
Dear Addy: In-District Legislative Meetings
Dear Addy, With Congress in recess, how can I continue to participate in legislative advocacy? Signed, Bleeding Disorders Advocate Dear Bleeding Disorders Advocate, Every August, the United States Congress embarks on a recess, temporarily adjourning its legislative business and allowing members to return to their home states and districts. The August recess tradition serves as […]
Word from Washington: July 2023
July saw mounting coverage losses from the national Medicaid unwinding. As of July 28, nearly four million people have been disenrolled from Medicaid since redeterminations began in April 2023. Three-quarters of that total lost coverage for procedural reasons, i.e., paperwork, and may still be eligible for Medicaid. In response to this dismaying track record: Also […]
Blog: Intern Introspective #7
It feels incredibly surreal to think about the fact that this is my final week at HFA this summer, and that in less than a week I will no longer be exploring D.C. and will instead be back home in San Diego. The past ten weeks here in Washington, D.C. with HFA have been an […]
Blog: Intern Introspective #6
The fact that I only have two months of interning this summer here in Washington, D.C. has led me to jam-pack my days full in a desperate attempt to make the most of this incredible opportunity. My weekdays always start with me hopping in the shower (shower count: 1) before I quickly cook myself a […]
Dear Addy: Finding Community
Dear Addy, I am the only person I know who has a bleeding disorder. I don’t know any other patients at my HTC, and I live pretty far away from my nearest member organization, so I don’t usually get the chance to attend community events. I want to connect with others in the community, but […]
State of the States: Summer 2023
Three more states act to protect consumers from harmful copay accumulators Legislation ensuring health plan consumers have access to the lifeline that third-party copay assistance provides was signed this quarter by governors in Colorado (S.B. 195), New Mexico (S.B. 51), and Texas (H.B. 999), along with the mayor of the District of Columbia (B.141). The […]
Blog: Intern Introspective #5
Last week, HFA held the Young Adult Advocacy Summit, or as we called it in-office, YAAS. Saturday’s evening began with a lovely introduction to all those who were flown in, and Noemy and I were quickly welcomed into the fold of young adults who were either bleeders or siblings of bleeders, just like myself. Being […]
Blog: Intern Introspective #4
A Day-in-the-Life of an HFA Intern: Greetings from the nation’s capital! As we reach the halfway point of my internship at HFA, I would say that I have found my rhythm in D.C. Although I have been in the district since late April for a previous internship, the way I prepare for a day in […]
Statement: HFA Responds to Latest Gene Therapy Announcement
Yesterday, the U.S. Food and Drug Administration approved Roctavian (valoctocogene roxaparvovec), the first gene therapy for hemophilia A. This new treatment option, for the treatment of adults with severe factor VIII deficiency, represents a significant milestone in the treatment of hemophilia A. As a community-based, patient-centered organization, Hemophilia Federation of America (HFA) intimately understands and […]
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