Membership

All of our programs and resources are 100% supported by donors, members, and sponsors. Your membership goes a long way to help patients, their caregivers, and their family as they manage the impact of this rare disease.

Individual Memberships

Basic

$ 0
per year
  • Dateline Subscription
  • e-Newsletter Subscription
  • Access to Educational Webinars

HFA Hero

$ 35
per person, per year
  • Hero Emails & Meetups
  • Hero Merch
  • Symposium Discounts
NEW

Corporate Partners

HTC
without 340B

$ 250
per year
  • Contact our team to learn more!

Specialty Pharmacies
340B HTC

$ 1,000
per year
  • Contact our team to learn more!

Pharmaceutical or Biotech

$ 5,000
per year
  • Contact our team to learn more!

Thank You to our Partners