Whether you have a bleeding disorder yourself or you are a caregiver to someone with a bleeding disorder, it is often a juggling act to live with a chronic condition and maintain your livelihood. This toolkit is comprised of resources from a variety of sources related to employment issues including information about the Family Medical Leave Act (FMLA), the Americans with Disabilities Act (ADA), job training and disclosure issues.

  • presentations (recorded webinars, videos)
  • resources and publications聽(articles, websites, PDFs)
  • government and organization resources

Note: Inclusion of resources by a third party site or organization do not constitute an endorsement by聽HFA, it鈥檚 Board, volunteers or staff.


YoungAdultHangout_IMAGE HFA Young Adults Hangout: Transitioning to Adulthood: Voices from the Community: This recorded hangout features young adults sharing their experiences of navigating school and the workplace with a bleeding disorder and an attorney from PSI鈥檚 A.C.C.E.S.S Program explains your rights as an employee with a bleeding disorder.

HiHoHiHo_Image HFA Families Webinar: Hi Ho, Hi Ho, It鈥檚 Off to Work I (Don鈥檛) Go: During this HFA Families Webinar, speakers from the U.S. Equal Employment Opportunity Commission and Department of Labor explained what the Family Medical Leave Act (FMLA) and the Americans with Disabilities Act (ADA) laws are, and how a parent can be eligible to use these benefits when you miss work due to your child’s bleeding disorder.



Patient Assistance Portal HFA Patient Assistance Portal: With employment changes, comes changing insurance plans. Review HFA鈥檚 Navigating Patient Assistance Programs chart to learn about manufacturer co-pay programs and patient assistance programs for assistance with factor when facing a gap in insurance coverage.
Dear Addy Header_Updated Hemophilia Federation of America Dear Addy Corner: Dear Addy is a regular advocacy feature from the Policy, Advocacy, and Government Relations Team at HFA that answers questions from the bleeding disorders community. The following links are Dear Addy answers related to employment issues:

StepsForLiving_IMAGE National Hemophilia Foundation: Steps for Living, Workplace Issues: Provides tips and information on disclosing your bleeding disorder, factors to consider surrounding job choice, and your rights as an employee.
Hemaware_IMAGE National Hemophilia Foundation, Hemaware Magazine: The National Hemophilia Foundation publishes a quarterly magazine with information for people with bleeding disorders. The following links are articles related to employment issues:

LAKelley_IMAGE LA Kelley Communications: LA Kelley Communications was founded in 1990 with the belief that any individual facing hardship, adversity or challenges-when given the right tools-can overcome, triumph, and even grow stronger in character and confidence.

national partnership for women&families_IMAGE FMLA Resources from theNational Partnership for Women & Families, a non-profit, non-partisan 501(c)3 organization helped draft the original Family and Medical Leave Act and continues work to聽 safeguard and expand its protections.

ACOG_IMAGE The American College of Obstetricians and Gynecologists: Journal Article, 鈥Work Loss Associated With Increased Menstrual Loss in the United States鈥 (PDF): This article studies the impact of heavy menstrual flow on missed time at work.
Vocational Rehab Agencies_IMAGE Vocational Rehabilitation:聽(PDF):聽Vocational rehabilitation agencies provide persons with disabilities with job coaching and training. This document from the Food & Drug Administration聽 provides contact information by state.



DeptofLabor_IMAGE United States Department of Labor: 聽This website provides an overview of the Family Medical Leave Act (FLMA) as well as fact sheets and resources, such as how to file a complaint with Wage and Hour Division of the Department of Labor.

  • Family and Medical Leave Act (FMLA) guidance, fact sheets, and tools are available on the FMLA website.
  • Note that many states have created or are in the process of creating their own FMLA policies. Check with your state organization to find out the laws in your state. IMAGE Jobs and Education for People with Disabilities:聽 This website provides links and information to help people with disabilities find a job, develop work skills, get support with job-seeking, find a federal job, find an education program, and file a complaint with the Equal Employment Opportunity Commission.
adagov_IMAGE Americans with Disabilities Act:聽 The Americans with Disabilities Act (ADA) protects persons with disabilities to participate fully in the workplace and in their communities.

PSI_IMAGE Patient Services, Inc (PSI): Since 1989 PSI has led the charge to provide much needed patient assistance, soliciting donations to fund thousands of patients and their families in a myriad of disease areas. Patient Services Inc (PSI)鈥檚 A.C.C.E.S.S Program helps families navigate state and federal entitlement programs and provides a legal support hotline to assist with workplace and health insurance issues.
EmploymentLawHQ_IMAGE is an interactive website that gives you instant feedback of situations on how rules for Family and Medical Leave usually apply.
nolo_IMAGE Nolo: Nolo, a wholly owned subsidiary of Internet Brands, is the integration of some of the Internet鈥檚 first legal sites, including, and These sites were combined with the ExpertHub technology platform in 2011 to form the Nolo Network. This link provides state specific information on the Family Medical Leave Act (FMLA).

JAN_IMAGE Job Accommodation Network: The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. This webpage provides suggestions on accommodations in for people with bleeding disorders in the workplace and this webpage provides information and resources for job-seekers.

Learning Central


HFA’s Learning Central: One of the ways you can learn about bleeding disorders is to educate yourself with medically-vetted, accurate information, like the educational information found in HFA’s Learning Central e-learning platform. You may learn something new or brush up on facts or gain the information you need to help educate others about bleeding disorders.
Employment Rights Course: Engage in four self-paced, interactive lessons specifically applicable to the bleeding disorders community. Learn practical information about the Americans with Disabilities Act and Family and Medical Leave Act and hear directly from community members about their experiences and tips for self-advocacy in the workplace. Access the course in HFA Learning Central: visit the Planning Office, then click on Employment Rights.

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