The HFA hosted a webinar on Monday August 30 that highlighted advocacy and legislative efforts focused on women and bleeding disorders. During the webinar participants learned how to advocate and raise awareness for individuals with undiagnosed bleeding disorders.聽聽The discussion also highlighted the current standard of care at Hemophilia Treatment Centers (HTCs) across the United States. Speakers during the webinar included: Derick Stace Naughton, Students for the Awareness of Bleeding Disorder and Kisa Carter, Public Policy Director, HFA who served as moderator.
One of the HFA’s goals is to raise awareness about women and bleeding disorders.聽 Women with bleeding disorders such as von Willebrand’s Disease (vWD) often go undiagnosed, leading to serious complications especially if they undergo invasive surgical procedures, such as a hysterectomy.聽 Approximately 1-2% of the U.S. population has von Willebrand’s Disease.
To view Derick Stace Naughton’s presentation click here.