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Sometimes I feel that Maddox doesn’t even have hemophilia, because he’s such a wild man, and responds so well to his new medication.

At first, we were so scared as a family to make the switch. Understanding that every family is different, we didn’t want to be swayed in the wrong direction. We have seen tremendous growth in Maddox’s ability to do normal kid things. Maddox is what I like to call “wild man.” He doesn’t stop for one second. Sure, we often have to take precautions at times, but honestly this little guy is tough as nails. By the end of the day he’s usually covered in bruises on his legs that never turn into bleeds, and a face full of Oreos and dirt. 

Since being in this new pandemic life we find ourselves outside almost every day and running around to alleviate some energy.  Maddox also is a new big brother to his little sister Lillie who he is very fond of; maybe even to fond of because he thinks she’s a life-sized doll.

Regardless of what the day is Maddox is still smiling. Even if he has a bloody nose, or a cut that bleeds a little longer than expected, he’s often still smiling. Maddox is enjoying his childhood, and is being a typical boy, which makes us happy.

 

 

Heather and her husband live in Massachusetts with their sons Maddox and Logan, and their brand new baby Lillie.

*Note: “Infusing Love: A Mom’s View,” is a blog collection of personal opinions and a representation of individuals experiences. While extensive efforts are made to ensure accuracy of the content, the blog entries do not represent HFA or its Board of Directors. The blog is also not intended to be construed as medical advice or the official opinion/position of HFA, its staff, or its Board of Directors. Readers are strongly encouraged to discuss their own medical treatment with their healthcare providers.​

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