I’ve seen HFA’s Facebook posts about Bleeding Disorders Awareness Month. Can you tell me more about it and how I can get involved?
For more than 30 years, the bleeding disorders community celebrated March as the unofficial Hemophilia Awareness Month. In 2016, this designation become official when the National Hemophilia Foundation (NHF) petitioned the US Department of Health and Human Services to have Bleeding Disorders Awareness Month included on its National Health Observances list for March. Throughout the month, national organizations like HFA and NHF, as well as local Member Organizations, spread awareness about bleeding disorders using various advocacy campaigns.
As you’ve already seen, in March, HFA is posting information on Facebook daily about bleeding disorders. Share these posts and include a comment about what the content means to you. This is an easy way to increase your involvement and educate others.
HFA has also put together an advocacy calendar for the month and will be sharing tips for how you can make advocacy a part of your regular routine. Here are some highlights so you can get started now!
- Contact your local media outlet and ask if they’ll do a piece on bleeding disorders, what’s happening in the community, and why this month is important to you.
- Want to be a stronger advocate? Volunteer! Contact your local bleeding disorders organization and learn about opportunities that fit your schedule and interests.
- Visit the policy priorities page on HFA’s website to better understand policy issues affecting the bleeding disorders community.
- Do you know your state and federal representatives? Find this information and how to contact them by using HFA’s Take Action Center.
- Check out and share the Bleeder’s Bill of Rights! Created by HFA’s Care Access Working Group, this tool is intended for self-advocacy and empowerment.
Have a question? Click HERE. Your name will be changed in the response.
HFA frequently receives questions from the bleeding disorders community related to advocacy issues. The questions often impact the entire community. In an effort to reach the largest audience possible with our responses to these widely applicable questions, HFA developed “Dear Addy.” Questions submitted to this column are edited in order to protect privacy and should be considered educational only, not individual guidance