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HFA News

American Plasma Users Coalition, A-PLUS, Seeks FDA-Community Research Agenda to Enhance The Safety of Our Nation’s Blood Supply

June 9, 2010

The Department of Health and Human Services, Advisory Committee on Blood Safety and Availability will be reviewing the current Food and Drug Administration (FDA) policy recommending that men wh have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood. Click here for the Release

Joint Statement on Addressing the MSM Blood Ban by Groups Representing People Living with Hemophilia, Gay Men and People Living with HIV/AIDS

June 9, 2010

The Department of  Health & Human Services, Advisory Committee on Blood Safety and Availability will be reviewing the current Food and Drug Administration (FDA) policy recommending that men who have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood.  Click here for the Press Release.

HFA Press Release: Facebook Fans Bring Community Friends Together

March 10, 2010

FOR IMMEDIATE RELEASE: Wednesday, March 10, 2010 Washington, D.C.:  There is no doubt that the social media trend has changed how the world communicates. From world events and tragedies to simply linking people together in a personal day-to-day style, social forums like Facebook have made an impact.  At the Hemophilia Federation of America (HFA), this […]

Infusion Set Needles [Manufactured by Nipro for Exelint]: Recall

January 26, 2010

Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets Exel/Exelint “Securetouch+” Safety Huber Infusion Sets Audience: Hospital Risk Managers, Surgical Service personnel FDA notified healthcare professionals of a Class I recall of Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets and Exel/Exelint “Securetouch+” Safety Huber Infusion Sets, manufactured by Nipro Medical Corporation for Exelint International Corporation due to […]

Press Release: HFA Voices Blood Safety Concerns

December 11, 2009

FOR IMMEDIATE RELEASE:   December 10, 2009 Washington, DC:  The Hemophilia Federation of America (HFA) expresses its concern regarding the ongoing labor issues involving the Teamsters Local 929 and the American Red Cross of Pennsylvania /New Jersey. The national blood system depends on skilled workers to provide clean, safe blood to laboratories. The blood is distilled […]

Press Release: HFA Recently Approved for NORD Membership

December 10, 2009

FOR IMMEDIATE RELEASE:    December 10, 2009 Washington, DC:  The National Organization for Rare Disorders (NORD) recently approved the Hemophilia Federation of America (HFA)for membership.  One of 150 member organizations, the HFA is excited about the opportunity to participate with NORD on important public policy, advocacy, awareness and educational issues.  Certain standards and requirements must be met […]

Press Release: HFA HOSTS FIRST ADVOCACY INTENSIVE

October 21, 2009

FOR IMMEDIATE RELEASE:     October 20, 2009  Washington, DC:  The Hemophilia Federation of America (HFA) held its first Advocacy Intensive weekend October 2 – 5, 2009.  The program is a best practice model for bringing HFA social advocacy programs full circle and encouraging members of the bleeding disorders community to reach their  full potential through role […]

Advocates in Action: The Forbes’ Family Meets President Obama

October 16, 2009

FOR IMMEDIATE RELEASE: October 16, 2009 Washington, DC:   Imagine having the opportunity to visit the Oval Office and meet the President of the United States.  This opportunity became a reality for 12-year old Emmanuel Forbes with severe hemophilia complicated by an inhibitor, his five siblings and parents, Michael and Jane Forbes. Emmanuel was granted his […]

Leland Smith

October 11, 2009

HFA Press Release: HFA MEETS GOAL OF 1,000 FANS ON OFFICIAL FACEBOOK PAGE!

September 28, 2009

FOR IMMEDIATE RELEASE:    September 28, 2009  Washington, DC:  The Hemophilia Federation of America (HFA) launched its first online community social networking medium in July 2009.  HFA’s official Facebook site is designed to make connections and build relationships with community members across the country. On September 19, 2009, just two months after the page was […]

HFA Press Release: HFA COLLABORATES WITH COTT OFFERING TRAVEL SCHOLARSHIPS TO SURVIVORS’ REUNION-CSL Behring offers $10,000 in support of the scholarships

September 23, 2009

FOR IMMEDIATE RELEASE: September 21, 2009  The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.  The celebration will be held at the Liaison Hotel in […]

HFA Press Release: HFA COLLABORATES WITH COTT OFFERING TRAVEL SCHOLARSHIPS TO SURVIVORS’ REUNION-Baxter offers $15,000 in support of scholarships

September 23, 2009

FOR IMMEDIATE RELEASE: September 21, 2009  The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.  The celebration will be held at the Liaison Hotel in […]

Alex & Jim

September 14, 2009

PRESS RELEASE: HFA WELCOMES NEW INTERN Amanda Winchester

September 8, 2009

FOR IMMEDIATE RELEASE: September 8, 2009 Washington, DC – Effective August 24, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Amanda Winchester, Intern.   Ms. Winchester’s primary responsibility is Helping Hands Coordinator. Helping Hands is a program for individuals with hemophilia and von Willebrand disease that provides emergent financial relief […]

Press Release: HFA Adds Voices Campaign Project Coordinator to National Team

July 24, 2009

FOR IMMEDIATE RELEASE:                                                                         July 23, 2009 HFA Adds Voices Campaign Project Coordinator to National Team Washington, DC – Effective July 6, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Ms. Katie Whittle from Seattle, Washington as its Voices Campaign Coordinator.  “We are delighted to have Katie on board.  Her […]

Press Release: CSL Behring Awards Multi-year Commitment to the HFA Voices Campaign

July 23, 2009

July 22, 2009      CSL Behring Awards Multi-year Commitment to the HFA Voices Campaign Washington, D.C. – The Hemophilia Federation of America was recently awarded a multi-year commitment to its Voices Campaign.  The HFA launched the program in May of 2009 at its annual meeting in Indianapolis, IN and has continued to build positive momentum […]

Share Your Voice

June 26, 2009

Share your voice with legislators

Share Your Voice

June 26, 2009

The Voices Campaign is HFA’s grassroots advocacy initiative aimed at raising general public and legislator awareness of the bleeding disorders community through personal stories from affected individuals and their families.  In the approaching national debates regarding health care reform, HFA wants to ensure the bleeding disorders community is heard, and through the Voices Campaign, members […]

Press Release: HFA Voices Campaign Gaining Momentum

June 25, 2009

June 25, 2009 Washington DC: Hemophilia Federation of America’s (HFA) grassroots “Voices Campaign” recently launched at the 2009 Educational Symposium in Indianapolis, IN is gaining momentum by collecting powerful stories from community members. “Now is the time for action.  As individuals and as a community, we must be accountable and make every effort to get […]

Real People DENIED Real Healthcare: Nathan Wilkes

May 1, 2009

Thomas Wilkes was born with severe hemophilia

Press Release: Hemophilia Federation Adds State Policy Expertise

April 13, 2009

April 13, 2009 Washington, DC:  Hemophilia Federation of America (HFA) is proud to welecome Stephen May in the newly created leadership position of Public Policy, State Affairs. The position was created to ramp up state-level advocacy diligence in response to community concerns of an ever-changing, turbulent healthcare landscape. The position’s responsibility includes pro-active public policy […]

Press Release: HFA receives $10,000 CSL Behring LEAD Grant

April 6, 2009

April 6, 2009

Washington, DC: Hemophilia Federation of America (HFA) has received a $10,000 grant from CSL Behring to fund its Legislative Action Center.
HFA is a nonprofit organization serving the bleeding disorders community. Established in 1994, the organization has offered programming and grassroots advocacy on behalf of its individual members and its twenty-nine member organizations.
The CSL Behring Local Empowerment Grant will be used to provide the community the Legislative Action Center tool (Capwiz) on the Hemophilia Federation website.


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