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NORD Press Release

 Danbury, CT. —– The leading advocacy groups for Americans and Europeans with rare diseases—the National Organization for Rare Disorders (NORD) and the European Organization for Rare Diseases (EURORDIS)—have signed a Memorandum of Understanding to join forces on several key strategic initiatives on behalf of rare disease patients and their families.  The intent is to increase […]

Wyeth Announces Recipients of the Soozie Courter "Sharing a Brighter Tomorrow" Hemophilia Scholarship Program

  Program Marks Continued Commitment to Education and Assistance to Hemophilia Community (Click Here for Announcement)  Collegeville, Pa., September 29, 2009 division of Wyeth (NYSE:WYE), today announced the recipients of the Soozie Courter “Sharing a Brighter Tomorrow” Hemophilia Scholarship Program for the 2009 assistance for higher education to individuals with hemophilia. Since 2002, Wyeth has donated […]

BioRx and Bayer Healthcare Offer Free

Cincinnati, Ohio (September 28, 2009) (Click Here for PDF)— Bayer HealthCare and BioRx, a specialty pharmaceutical company, announce the availability of Quest for Infusion: Nate Goes to Camp, a new children’s book about hemophilia.  Quest for Infusion: Nate Goes to Camp, written by Chris Perretti Barnes and illustrated by Michael Graham, is the story of […]

HFA Press Release: HFA MEETS GOAL OF 1,000 FANS ON OFFICIAL FACEBOOK PAGE!

FOR IMMEDIATE RELEASE:    September 28, 2009  Washington, DC:  The Hemophilia Federation of America (HFA) launched its first online community social networking medium in July 2009.  HFA’s official Facebook site is designed to make connections and build relationships with community members across the country. On September 19, 2009, just two months after the page was […]

PPTA LAUNCHES NEW WEBSITE TOOL

FOR IMMEDIATE RELEASE  September 23, 2009  Contact: Kara Flynn                                                 Kym H. Kilbourne (443) 458-4669                                                           (443) 458-4682 (443) 370-1177 (cellular)                                           (443) 995-2102 (cellular) kflynn@pptaglobal.org                                            kkilbourne@pptaglobal.org PPTA LAUNCHES NEW WEBSITE TOOL (Click Here for PDF) Enhancement to help potential plasma donors find plasma centers  ANNAPOLIS, MD (September 23, 2009) – Visitors to DonatingPlasma.org can more […]

HFA Press Release: HFA COLLABORATES WITH COTT OFFERING TRAVEL SCHOLARSHIPS TO SURVIVORS’ REUNION-CSL Behring offers $10,000 in support of the scholarships

FOR IMMEDIATE RELEASE: September 21, 2009  The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.  The celebration will be held at the Liaison Hotel in […]

HFA Press Release: HFA COLLABORATES WITH COTT OFFERING TRAVEL SCHOLARSHIPS TO SURVIVORS’ REUNION-Baxter offers $15,000 in support of scholarships

FOR IMMEDIATE RELEASE: September 21, 2009  The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.  The celebration will be held at the Liaison Hotel in […]

2010 State Legislative Preview: NEW HAMPSHIRE

NEW HAMPSHIRE RAISES DEPENDENT AGE ON HC POLICIES Most noteworthy for Granite State residents, 2009 saw the increase in the dependent age of children covered under a parents private insurance policy to 29 years of age. Also, New Hampshire continues to impose restrictions on the practice of data mining in light of its landmark bill […]

2010 State Legislative Preview: RHODE ISLAND

RI MOVES ON MEDICAID REFORM  In 2009, Ocean State lawmakers passed (H5112) Medicaid Reform. The bill helps RI with their Medicaid waiver. The waiver authorizes the implementation of the RI Global Consumer Choice Demonstration; creates the demonstration implementation taskforce. The bill became effective upon its passage on July 1, 2009 and is intended to lead to […]

2010 State Legislative Preview: VERMONT

VT LOOKS TO CONSOLIDATE PAST GAINS 2009 saw Vermont moving to implement comprehensive palliative care legislation, the nation’s strictest direct marketing rules to medical providers and the imposition of sole sourcing for its managed Medicaid program. As if this wasn’t enough, Vermont’s law prohibiting datamining is still making its way through the federal courts, as […]

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