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News & Perspectives

Aloha means Health Access

October 23, 2009

When somebody mentions Hawaii… visions of white sand beaches and volcanoes come to mind. What doesn’t come to mind is Hawaii’s healthcare services. Off the radar screen, the state has quietly assembled healthcare institutions that seem to be delivering Hawaiians good care at a reasonable price. People on the mainland are starting to notice. This […]

Derick Stace-Naughton

October 22, 2009

Derick Stace-Naughton, a young man with von Willebrand’s Disease, started the group “Students for the Awareness of Bleeding Disorders.”  Derick wants YOU to urge your member of congress to co-sponsor H.Con Res.147.  H.Con.Res.147 promotes screening for vWD.

Derick Stace-Naughton

October 22, 2009

[vimeo]http://vimeo.com/7055318[/vimeo] Derick Stace-Naughton, a young man with von Willebrand’s Disease, started the group “Students for the Awareness of Bleeding Disorders.”  Derick wants YOU to urge your member of congress to co-sponsor H.Con Res.147.  H.Con.Res.147 promotes screening for vWD.

Press Release: HFA HOSTS FIRST ADVOCACY INTENSIVE

October 21, 2009

FOR IMMEDIATE RELEASE:     October 20, 2009  Washington, DC:  The Hemophilia Federation of America (HFA) held its first Advocacy Intensive weekend October 2 – 5, 2009.  The program is a best practice model for bringing HFA social advocacy programs full circle and encouraging members of the bleeding disorders community to reach their  full potential through role […]

HFA’s 2010 State Legislative Agenda

October 20, 2009

HFA is proud to release its 2010 State Legislative Agenda. This list has been compiled after consultation with members of the Federation’s Advocacy and Executive Committees. Our intention is to create a central clearinghouse for legislative proposals which we believe are of interest to segments of the bleeding disorders community. The policy clearinghouse features a […]

John

October 20, 2009

“One Man’s Story” By John Jarratt, M. Ed., L.P.C. Download John’s Story It is my hope that the new millennium will bring about a better understanding of hemophilia and bleeding disorders, along with an improved relationship and collaboration with consumers, chapters, foundations, hemophilia treatment centers, clinics, private practitioners, emergency room personnel, national organizations, and industry. […]

Laveane

October 20, 2009

By Laveane Lovelady, Damascus, AR Download Laveane’s Story This story is about me, but it all started when my son Ryan was born August 15, 1989. It was after his birth when I was finally diagnosed with mild Hemophilia A, because he was diagnosed with severe Hemophilia A. My blood pressure had gotten dangerously high […]

Barry

October 20, 2009

The Long Mile by Barry Haarde Download Barry’s Story There was only one more hill to climb as I rounded the corner that brought the finish line into view. I had ridden my bicycle 175 miles since lining up at the starting point back in Houston the day before. After more than 10 hours on […]

Rick

October 20, 2009

Download Rick’s Story By Rick, Jessie’s Dad My son Jesse was born on Valentine’s Day in 2001. He is now 4 years old and has severe hemophilia. It is hard to believe the amount of emotions that have transpired in the short period since his birth. Life leads us down many paths. The path of […]

Leland

October 20, 2009

Leland is a teenager with hemophilia and an inhibitor who is concerned with lifetime caps and how they affect his future in the bleeding disorders community.


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