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News & Perspectives

HFA applauds Paterson, NY legislature effort to address the coverage needs of dependent children

August 12, 2009

Last week, New York Gov. David A. Paterson has signed into law a series of health reform efforts, including: extending coverage to those who are uninsured and 29 or younger and increasing the age of a dependent to 29. In signing the bills, Paterson said “the reforms will make health insurance more affordable for New […]

Town hall meeting frenzy

August 7, 2009

Town hall meetings across the United States have gotten out of control.  Fights, yelling, tombstones with names of Congress members, and vulgar posters are the norm.  Members of Congress are in fear of their lives.  Some have opted for “tele-town hall meetings” instead. What happened to civil meetings with dialogue between Congress members and their […]

The Health and Human Services Secretary discusses health insurance reform on 8-7-09

August 6, 2009

HHS Secretary Kathleen Sebelius and top HHS officials plan to discuss reform of the health insurance system Friday at 1pm.  To watch the webcast, click here.

News Release

August 6, 2009

August 6, 2009 (Cincinnati, Ohio)   BioRx, a specialty pharmacy, and Hemophilia of North Carolina, a non-profit organization whose goal is to assist, involve and educate persons affected by bleeding disorders, announce the winners of the 2009 BioRx Educational Scholarships.  Each of the winners receives a $2,000 scholarship.  The scholarships are funded by BioRx through an […]

For Immediate Release: July 29, 2009

August 6, 2009

Contact: CDC Division of Media Relations (404) 639-3286 CDC Advisors Make Recommendations for Use of Vaccine Against Novel H1N1 The Centers for Disease Control and Prevention’s Advisory Committee on Immunization Practices (ACIP) met today to make recommendations for use of vaccine against novel influenza A (H1N1).  The committee met to develop recommendations on who should […]

Why is Health Information Technology emerging as a state issue?

August 6, 2009

Much of the action on health care continues to occur at state and local levels, with support from the federal government and national and local philanthropies. Many states begin by forming a commission to develop an action plan for HIT and, most significantly, bring together the various interested parties. Since 2005, almost one-third (17) of […]

Plasma Users Coalition (PUC) Develops Health Care Reform Principles

August 6, 2009

Several national patient organizations representing the Alpha-1 antitipsin, Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Guillain-Barre, hemophilia, platelet disorders, primary immunodeficiency diseases and other rare disease communities have formed a group to address the unique needs of users of “plasma protein therapies” (plasma derived and recombinant therapies). To address the uniqueness of PUC’s membership, the group developed […]

Congratulations to the Pennsylvania Bleeding Disorders Community

August 5, 2009

This afternoon, the Hemophilia Standards of Care Act passed in the Pennsylvania House of Representatives by a vote of 197-0.The bipartisan nature of this vote underlies the import of this legislation. In winning on the floor, the community withstood enormous pressure from Pennsylvania Insurance lobby and the business community. The legislation now moves on to […]

It’s all about the kids…

August 3, 2009

If you have found your way to this blog, you might consider yourself web savvy. Phrases like digital divide and things like tweeting may even be second nature to you. But if you have teenagers in your home, you are always playing catch up. Cyberspace is their playground. You and I know that. Your kids know […]

About Advisory Committees…

August 1, 2009

Last week, Ohio Governor Ted Strickland vetoed the formation of a new Hemophilia Advisory Committee saying that one existed as a matter of Ohio law and had been dormant for years, and as such the new measure was redundant. In Georgia, Governor Roy Barnes delivered a veto this month to a measure that would have created […]


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