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America’s Affordable Health Choices Act of 2009

On July 14, 2009 The House Tri-Committee’s introduced H.R. 3200, a 1018-page bill, nearly 200-pages more than the draft proposal released several weeks ago.   To read the bill or a summary, please visit the Committee on Ways and Means , Committee on Education and Labor, or Committee on Energy and Commerce websites.  Committees will begin […]

PA Standards of Care bill advancing

Last week, the Pennsylvania House of Representatives’ Insurance Committee passed HB 620, The Hemophilia Standards of Care unanimously and without amendments. It is likely that the full House will consider the bill within the next several days.   As a national community it is incumbent that we continue to support the efforts of the local Bleeding […]

Senator Chuck Grassley tells town hall meeting attendee “go work for the federal government” for affordable insurance

During a town hall meeting, Senator Chuck Grassley (R-IA), ranking member of the Senate Finance Committee and member of the Senate Budget Committee tells an attendee to “go work for the federal government” to obtain health insurance similar to what members of Congress have.  The attendee questioned why the Senator’s insurance was cheaper and better […]

What's your question?

Obama wants to hear from you.  On Wednesday (July 1), Obama will answer questions submitted by people across the nation.  Do you have a question about health care reform?  Please submit your question (video, Facebook, Twitter, etc.) to the following link: KC

Congress wants to hear from you!

Congress breaks for recess beginning Monday, June 29 thru Friday, July 3 2009.  They are back in their home stated during this time.  It’s important that Congress hears from consumers.  The consumer perspective matters during such an important debate.  Decisions on reforming the health care system are happening now.  Please see the the Friday Update, dated June 26, 2009 […]

Share Your Voice

Share your voice with legislators

Share Your Voice

The Voices Campaign is HFA’s grassroots advocacy initiative aimed at raising general public and legislator awareness of the bleeding disorders community through personal stories from affected individuals and their families.  In the approaching national debates regarding health care reform, HFA wants to ensure the bleeding disorders community is heard, and through the Voices Campaign, members […]

Press Release: HFA Voices Campaign Gaining Momentum

June 25, 2009 Washington DC: Hemophilia Federation of America’s (HFA) grassroots “Voices Campaign” recently launched at the 2009 Educational Symposium in Indianapolis, IN is gaining momentum by collecting powerful stories from community members. “Now is the time for action.  As individuals and as a community, we must be accountable and make every effort to get […]

Microsoft Word - Destinys Story Age 12.doc

They Need to Hear From Us: Destiny

I learned that legislators do want to hear from me.

House Tri-Committees release a health care reform proposal

Today, the House Ways and Means, Energy and Commerce, and Education and Labor Committees’ released an 850-page health care reform proposal.  To read a summary, please visit the House Committee on Ways and Means website.

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