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News & Perspectives

Healthcare Federalism

July 29, 2009

Watching the goings on in Congress around the various healthcare proposals, one might think that the day after Congress passes a reform package we all will immediately have insurance coverage. A quick primer in legislative process might come in handy here. Congress is charged with creating the rules. This is going on now. The various […]

Bayer HealthCare Launches Hemophilia Self-Infusion Training Program

July 28, 2009

News Release   Innovative BayCuff™ Program Empowers Young Members of Hemophilia A Community to Take Control of Their Treatment WAYNE, NJ, July 9, 2009 – Today, Bayer HealthCare Pharmaceuticals launched the BayCuff™ self-infusion training program, an educational initiative designed to make infusion of recombinant factor VIII easier for both patients with hemophilia A and for their […]

FDA Update: U.S. Department of Health and Human Services

July 28, 2009

Guidance for Industry: Nucleic Acid Testing (NAT) to Reduce the Possible Risk of Parvovirus B19 Transmission by Plasma-Derived Products: http://www.fda.gov/BiologicsBloodVaccines/GuidanceComplianceRegulatoryInformation/Guidances/default.htm

Kimberly’s “wild” town-hall meeting with Rep. Sensenbrenner

July 27, 2009

“Obama’s health plan will make the current situation worse”.  Rep. Sensenbrenner’s declaration set the tone for a “very charged up” crowd at recent town-hall meeting attended by HFA’s very own Executive Director, Kimberly Haugstad.  Many attendees in the standing room only meeting expressed significant frustration with the member who represents Wisconsin’s 5th-district.  Obama supporters expressed […]

Check to see how the House Tri-Committee health reform bill will impact where you live

July 27, 2009

The House Energy and Commerce Committee analyzed the impact that America’s Affordable Health Choices Act of 2009 (H.R. 3200) would have on each member’s district.  To learn more about the impact of the legislation on small businesses, seniors in Medicare, health care providers, and the uninsured, please click DISTRICT-BY-DISTRICT IMPACT.

Von Willebrand Test

July 27, 2009

Google Web Alert for: von Willibrand Von Willebrand Test Tests may need to be done more than once because these levels may rise and fall over time in an individual The most common treatment for von Willebrand …

What should be the deadline?

July 24, 2009

In a press conference earlier this week, President Obama said “if there is not a deadline in Washington, nothing happens”.  Seven members of the Blue Dog Coalition expressed concerns over the cost and the need to pass “deficit neutral” health reform legislation.  Representative Mike Ross, Chairman of the Blue Dog Health Care Task Force feels […]

Press Release: HFA Adds Voices Campaign Project Coordinator to National Team

July 24, 2009

FOR IMMEDIATE RELEASE:                                                                         July 23, 2009 HFA Adds Voices Campaign Project Coordinator to National Team Washington, DC – Effective July 6, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Ms. Katie Whittle from Seattle, Washington as its Voices Campaign Coordinator.  “We are delighted to have Katie on board.  Her […]

Press Release: CSL Behring Awards Multi-year Commitment to the HFA Voices Campaign

July 23, 2009

July 22, 2009      CSL Behring Awards Multi-year Commitment to the HFA Voices Campaign Washington, D.C. – The Hemophilia Federation of America was recently awarded a multi-year commitment to its Voices Campaign.  The HFA launched the program in May of 2009 at its annual meeting in Indianapolis, IN and has continued to build positive momentum […]

Health care reform made simple

July 23, 2009

The Kaiser Family Foundation has put together a great tool to help decipher and compare the health care reform bills.  If you don’t have time to read thousands of pages of documents filled with legislative language, this tool provides easy-to-read summaries of sections within the bills.  It allows you to compare the most popular reform […]


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