Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
As parents, we are always talking about the safety of our kids, families, cars, food, neighborhoods, churches, malls etc. Let’s face it: our world is not as “safe” as it used to be, except when it comes to hemophilia! As a mother of a very active two-year-old, a sister of a stubborn 40-year-old, and the niece […]
As I have become more involved in the hemophilia community over the last few years, and read more stories online, it is evident that each person with hemophilia and the people caring for them have such different experiences with bleeds and treatments. When Chris was young, we were told Chris wasn’t your “typical” child with […]
By Cazandra Campos-MacDonald One thing I’ve learned is that right when I think I’ve got hemophilia all figured out, something comes along that blows my perception and understanding right out of the water. I’ve learned that you never know when your experience will ring true with someone else and make them feel less alone. That […]
By: Emily Boyer It has been a long day; an immeasurably long day. We spent it at the Hemophilia Treatment Center (HTC) in an attempt to rid my little one’s body of a persistent inhibitor. It was long. I am tired. My house is a mess – I do not remember the last time my […]
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