Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
I am exhausted. So very exhausted. I am pleading to myself that there isn’t something wrong; that the whimpers and small cries I hear as he sleeps aren’t there and that it is from sleep deprivation. I am drifting in and out of sleep on the baby glider that still graces his room even though […]
When Thomas was in preschool, my family and I attended our first HFA Symposium. One of the educational sessions featured a panel of speakers who shared how to best prepare yourself, your child, and your school for a child with hemophilia. I took copious notes during that session because we were only two years away […]
For the past four years I have been participating in Hemophilia of South Carolina’s legislative days. During this annual event, I meet with our local representatives to share my experience of raising a child with a bleeding disorder and why it is important to support state programs that support our community. In prior years, I […]
Earlier this month, Jackson and I attended the Ohio Statehouse Days hosted by the Ohio Bleeding Disorder Council. This was a time for families and individuals with bleeding disorders to meet with their senators and representatives to talk about issues and legislation that is vital to our community. This is the third year that we […]
You may have seen the new campaign, “Ban Bossy” that features Beyonce, Michelle Obama, Sheryl Sanberg and other prominent female figures. This campaign is focused on encouraging girls to be confident leaders, while discouraging labels such as bossy, aggressive, angry, or one of the many other commonly used epithets. I think we as Hemo Moms […]
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