Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Dear Addy, I’ve heard friends in the bleeding disorders community speak about depression and other mental health concerns. I want to support them, but I’m not sure how to approach this sensitive topic. Can you offer guidance on how to have a conversation with friends about mental health? Signed, Caring Friend Dear Friend, Thank you […]
Does anyone really like getting stuck with needles? I don’t and I only gets labs drawn yearly and have my flu shot once a year. When you have hemophilia and you have serious needle phobia, infusions don’t go well. My son Chris, who is now 30, admits he still has severe needle phobia. Chris’s first […]
It is a common refrain to hear medical professionals comment on how well Logan does with his infusions. This is usually echoed in a, “He is such a champ,” or “How did you get to be so brave,” or the sadder version, “I wish my older patients were this good.” I am proud of Logan; […]
I don’t think I’ll ever forget the day I got the phone call — the one I had been dreading since my daughter was diagnosed with Platelet Storage Pool Disorder (PSPD). It was 10:30 AM on a Thursday. I was singing to the preschoolers where I work when my colleague brought me the phone. She had that […]
I have struggled with anxiety for as long as I can remember. It took me years before I realized what it was and that it was real. My mother also lived with it, but our family did not realize it until after she passed away. It is a condition that can be handled in many […]
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