Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Each year, the HFA staff recognizes the national spirit and remarkable volunteerism for HFA with the #bleedingdisorders community. As #VolunteerAppreciationMonth comes to a close this week, we will be recognizing award winners from #HFA2017. Today, we remember Star Tyree, a long-time HFA supporter, volunteer, and friend. Starlyn (Star) Tyree was a former Executive Director […]
By Elaine Chan, MSW, MPH At any point, families living with a bleeding disorder can experience financial hardship because of their medical situation. HFA’s Helping Hands Program has become a safety net for thousands of families throughout the years. Helping Hands has provided many families with assistance for expenses like housing, utilities, and transportation. In […]
Dear Addy, Several parents that I’ve met at the HTC have recommended I should get my daughter a medical ID bracelet. Why is this so important? Are there resources available to help me get her one? Signed Inquiring About IDs Dear Inquiring, For patients with serious medical conditions like a bleeding disorder, it’s important that […]
It’s not too late to make a difference! The Gears for Good bike ride is this Saturday, September 26th, 2015. FitFactor encourages physical activity in individuals with bleeding disorders. HFA provides an opportunity for those who are physically active to benefit the bleeding disorders community in our annual charity bike ride-Gears for Good. You don’t […]
I’d like to make something very clear: I’m not one of those people who wake up in the morning dying to go for a bike ride! It’s more of a sigh, I guess I should go ride my bike… I first heard about Gears for Good from my friend, Diane. She told me about a […]
In 2014, HFA’s Helping Hands program assisted 275 households and distributed over $124,00 in direct aid to families in the bleeding disorders community! Of those 275 households helped in 2014, we assisted 95 families/individuals with their housing expenses. Read how one family benefited from this vital program… I cannot thank Helping Hands enough for what they did for my family. Last […]
“Thank you so much for all your assistance. I appreciate all your organization does for the hemophilia community. -Helping Hands recipient About HFA’s Helping Hands Program: Helping Hands is a unique financial assistance program that provides individuals and families within the bleeding disorders community with basic living expenses. It was designed to be a rapid, non-invasive, temporary […]
This is becoming one of my favorite times of the year to be a bleeding disorders advocate. It’s the time of year when individuals of all ages come together to raise crucial money for the community by participating in walks and bike rides across the country. In 2011, HFA hosted it’s first annual Gears for […]
Earlier this year we encouraged the bleeding disorders community to vote for Vaughn Ripley, fitness guru living with hemophilia and HIV, during a Men’s Health cover contest. Due to your support, Vaughn received nearly 30,000 votes, earning him the below article in the November edition of the magazine! This article helps to bring awareness and education about […]
I am who I am because of you. I usually hear that in reference to a partner or spouse, not a child. For the past 22 years, Max has given me more laughter, tears, and lessons than anyone I have ever known. I think many hemophilia parents might feel the same, whether we had kids […]
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