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Volunteer Spotlight: No Brighter Star

April 24, 2017

Each year, the HFA staff recognizes the national spirit and remarkable volunteerism for HFA with the #bleedingdisorders community. As #VolunteerAppreciationMonth comes to a close this week, we will be recognizing award winners from #HFA2017. Today, we remember Star Tyree, a long-time HFA supporter, volunteer, and friend.   Starlyn (Star) Tyree was a former Executive Director […]

What is Helping Hands?

January 5, 2017

By Elaine Chan, MSW, MPH At any point, families living with a bleeding disorder can experience financial hardship because of their medical situation. HFA’s Helping Hands Program has become a safety net for thousands of families throughout the years. Helping Hands has provided many families with assistance for expenses like housing, utilities, and transportation. In […]

Dear Addy: Why Are Medical Alert IDs Important?

January 15, 2016

Dear Addy, Several parents that I’ve met at the HTC have recommended I should get my daughter a medical ID bracelet. Why is this so important? Are there resources available to help me get her one? Signed Inquiring About IDs Dear Inquiring, For patients with serious medical conditions like a bleeding disorder, it’s important that […]

Get Behind “Gears for Good”

September 24, 2015

It’s not too late to make a difference! The Gears for Good bike ride is this Saturday, September 26th, 2015. FitFactor encourages physical activity in individuals with bleeding disorders.  HFA provides an opportunity for those who are physically active to benefit the bleeding disorders community in our annual charity bike ride-Gears for Good.  You don’t […]

Infusing Love: It’s Like Riding A Bike

September 23, 2015

I’d like to make something very clear: I’m not one of those people who wake up in the morning dying to go for a bike ride! It’s more of a sigh, I guess I should go ride my bike… I first heard about Gears for Good from my friend, Diane. She told me about a […]

Helping Hands: Housing Expenses

September 8, 2015

In 2014, HFA’s Helping Hands program assisted 275 households and distributed over $124,00 in direct aid to families in the bleeding disorders community! Of those 275 households helped in 2014, we assisted 95  families/individuals with their housing expenses. Read how one family benefited from this vital program… I cannot thank Helping Hands enough for what they did for my family. Last […]

Helping Hands: Giving Back to the Community

September 8, 2015

  “Thank you so much for all your assistance. I appreciate all your organization does for the hemophilia community. -Helping Hands recipient About HFA’s Helping Hands Program:  Helping Hands is a unique financial assistance program that provides individuals and families within the bleeding disorders community with basic living expenses. It was designed to be a rapid, non-invasive, temporary […]

Infusing Love: Physical Fundraising

May 20, 2015

This is becoming one of my favorite times of the year to be a bleeding disorders advocate. It’s the time of year when individuals of all ages come together to raise crucial money for the community by participating in walks and bike rides across the country. In 2011, HFA hosted its first annual Gears for […]

Mens Health Magazine: Vaughn Ripley

October 28, 2014

Earlier this year we encouraged the bleeding disorders community to vote for Vaughn Ripley, fitness guru living with hemophilia and HIV, during a Men’s Health cover contest. Due to your support, Vaughn received nearly 30,000 votes, earning him the below article in the November edition of the magazine! This article helps to bring awareness and education about […]

Infusing Love: I Am Who I Am

October 8, 2014

I am who I am because of you. I usually hear that in reference to a partner or spouse, not a child. For the past 22 years, Max has given me more laughter, tears, and lessons than anyone I have ever known. I think many hemophilia parents might feel the same, whether we had kids […]

Gears for Good: Your Chance to Make a Difference!

September 25, 2014

There is still time to make a difference! The Gears for Good bike ride is this weekend, September 26-28th, 2014. FitFactor encourages physical activity in individuals with bleeding disorders.  HFA provides an opportunity for those who are physically active to benefit the bleeding disorders community in our annual charity bike ride-Gears for Good.  You don’t […]

Infusing Love: Outside the Comfort Zone

September 24, 2014

[glossary_exclude] This week is the 4th annual HFA Gears for Good bike ride, which means it’s also been one year since I did my first Gears for Good ride in DC.  As I look back on those three days, I’m flooded with many different emotions. I am not a cyclist.  When the ride was about […]

Helping Hands: Housing Expenses

September 19, 2014

“Thank you so much for all your assistance. I appreciate all your organization does for the hemophilia community. -Helping Hands recipient, 2012 “In late July, a single mom with two young children was referred to Helping Hands to assist in paying her rent after a recent hospitalization of her son with moderate hemophilia A. At […]

Helping Hands: Durable Medical Items

September 12, 2014

[glossary_exclude]   “Thank you for your financial assistance so that we were able to add a chair lift. Prior to installation, I had numerous falls which were injuring to my knees causing decreased stability and mobility. Since the chair lift installation, I have not had a fall and my knees are strengthening and I have […]

Infusing Love: Helping Others, One Finger at a Time

September 10, 2014

Shortly after Thomas was born, the National Hemophilia Foundation (NHF) Annual Meeting was being held in Salt Lake City.  My husband, Nathan, and I were eager to absorb any and all information about hemophilia, so we made the decision to pack up our 2-year-old daughter, Nora, and 3 months old Thomas, and take a road […]

A Critical Safety Net from the Past to the Present

September 8, 2014

Helping Hands is a unique financial assistance program that assists individuals and families within the bleeding disorders community with basic living  expenses. It was designed to be a rapid, non-invasive, temporary resource for emergency situations and provide a foundation for future financial stability. In 1997, HFA started the Helping Hands program when it noticed there was an unmet need within […]

All In for Gears for Good!!

March 14, 2014

The purpose of HFA’s FitFactor program is to provide the bleeding disorders community with services that are designed to improve health, fitness, and quality of life through regular physical activity and proper nutrition. Each year, in an effort to promote physical activity in the community and raise money for individuals and families in the bleeding […]

It’s Not Too Late-Gears for Good 2013

September 25, 2013

It’s not too late to make a difference! The Gears for Good bike ride is this Saturday, September 28th, 2013.  FitFactor encourages physical activity in individuals with bleeding disorders.  HFA provides an opportunity for those who are physically active to benefit the bleeding disorders community in our annual charity bike ride-Gears for Good.  You don’t […]

We’re All In This Together

September 4, 2013

 By Sonji Wilkes I never could have imagined that hearing the words, “Thomas has severe hemophilia,” would equate to being thrust into a world of inspirational people and unexpected acts of kindness.  When Thomas was diagnosed and the doctor asked, “Do you have a good insurance plan?” my mind immediately focused on the challenges we […]


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