Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Does anyone really like getting stuck with needles? I don’t and I only gets labs drawn yearly and have my flu shot once a year. When you have hemophilia and you have serious needle phobia, infusions don’t go well. My son Chris, who is now 30, admits he still has severe needle phobia. Chris’s first […]
Note: This is part two of a three part series. Click HERE to read part one. Although my Benny is still not self-infusing, the last few months have been a positive journey for us! As noted in my last blog, my 12-year-old has been extremely anxious and stressed about doing his own needle stick. We […]
I’ve seen a recurring question in the bleeding disorders community a lot in the past few weeks:, “Will I ever get used to sticking/poking my kid?” The answer is yes and no. Think about it — there is nothing normal about sticking your child with an IV needle or accessing their port to infuse them […]
My non-hemophilia mom friends have often say to me, “I just don’t know how you do it. I just can’t imagine raising a child with hemophilia.” I normally reply with, “my son with hemophilia is my baby, and I’ll do anything for him.” Earlier this summer, this very conversation played out between myself and HFA […]
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