Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Dear Addy, My eleven-year-old son recently shared that he’s being bullied at school because of bruising caused by his bleeding disorder. How can I help him educate his classmates about hemophilia and prevent future bullying? As much as I want to protect my son, I also know that I need to empower him to […]
Buying school supplies prior to the beginning of each school year is a rite of passage. Until my kids got to high school, I was more than happy to take advantage of the school supply kits offered by our school. Even so, each year, I still have to make multiple trips to the store for […]
As I walk through the aisles of our local office supply store, I can’t help but to get a tinge of sadness. The smell of fresh paper, pens, pencils, and crayons are enough for this former teacher to break down right there in the middle of Office Depot. Not that I am unhappy doing what […]
When Thomas was in preschool, my family and I attended our first HFA Symposium. One of the educational sessions featured a panel of speakers who shared how to best prepare yourself, your child, and your school for a child with hemophilia. I took copious notes during that session because we were only two years away […]
I deal with mommy guilt every time Jackson has a bleed. When my son is having a bleed, he tells me before there is any visible signs off swelling. I never doubt when he tells me…he knows his body. Two weeks ago, we got a dreaded call from the school health aide letting us know […]
Like all parents, I spend a few hours each August filling out back to school paperwork. It’s a tedious task. Once I finish all the required forms: emergency contact, acceptable technology use, and parent-teacher organization forms, I begin tackling the hemophilia forms. I update Thomas’s Individual Health Plan (IHP), and his “My Bleeding Disorder” document […]
It’s that glorious time of year when pumpkin fever has taken over and everywhere you look is pumpkin this and pumpkin that. Local farmers’ markets are overflowing with a fall harvest of crisp apples and colorful displays of squash and gourds. Overindulging on warm apple cider donuts is accepted as a guilty pleasure, marking the […]
Our Back to School toolkit was created for parents of children with a bleeding disorder. Check it out for examples of IHP, 504 & IEP plans, and a customizable PowerPoint presentation to help you advocate for your child: http://www.hemophiliafed.org/?p=17892 In a week my oldest son, Marques, will start middle school and I can’t help but to […]
The first day of school is supposed to be hot, sunny and bright. Thomas’s first day of school – actually his second first day of school – was on February 4, 2014 and only had a high of fifteen degrees Fahrenheit. It was not your typical first day of school in many ways. It was […]
Thomas’s first day of third grade was spent in a wheelchair, thanks to an ankle bleed. It certainly wasn’t the first time he had to attend school in the ‘chair,’ but I hated that it had to fall on the first day of school. We’ve always been very open about hemophilia – in first grade […]
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