Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
Every hemo mom has the day she must send her child off on an overnight school trip, trusting that she has done everything she can to prepare her child for the responsibility of being on their own. My time came a few weeks ago when my son went to Orlando with his Sing Out […]
Whether you are escaping the winter weather for some R&R by the beach, or heading to a relative’s home to catch up, travel disrupts your normal schedule and can make it harder to stay on top of your health and fitness routine. Working out is often easily forgotten on vacation as other activities take priority. […]
Dear Addy, My son is about to start summer vacation. While he is excited, I’m concerned about all of the activities he will be doing. It seems everything he enjoys involves risking a bleed. How do I monitor my child’s safety while allowing him to have fun this summer? Signed, Anxious About Summer Break Dear […]
Dear Addy, “My family and I are traveling out of state for the holidays. It is our first time traveling away from our hemophilia treatment center. Because of my son’s bleeding disorder we are concerned about insurance covering any emergency medical care he may need at an out of state hospital. How can I […]
I’ve been traveling more this past year than ever before. It’s both a blessing and a curse each time I leave for a trip on my own without the rest of the family. The anticipation of having some solitude and quiet time is fantastic. On the flip side, I’m a typical control-freak of a hemo […]
By Maryann May Being prepared took on a new meaning after having Max. It’s frightening and frustrating to know your child is hurt, but the key is to remain calm. Whether you’re on a trip or stranded in your own home, it never solves anything to panic. For me, the hardest part of adjusting to […]
As we celebrate America’s Independence Day, nothing says it more than the wearing of red, white and blue, a parade and a night of fireworks. Self- infusion is Independence Day for kids with bleeding disorders. They wear their medical alert bracelets, they go to camps, they practice – and sometimes struggle – with veins that […]
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