FDA Grants Breakthrough Therapy for Subcutaneous Inhibitor Treatment

Note: This is an edited form of a press release from Genentech. To read the original release in its entirety, click here. Genentech announced on Friday, September 4, 2015, that the U.S. Food and Drug Administration (FDA) has granted breakthrough therapy designation to ACE910 (RG6013, RO5534262) for the prophylactic treatment of people who are 12 years […]

How to Bust Stress

There are all kinds of reasons someone with a bleeding disorder or a caregiver to someone with a bleeding disorder might feel stress.  Aside from the daily stressors that we all feel, there can be added financial pressures, anxiety over treatment, running to appointments, dealing with a bleed, the list goes on and on.Stress can […]

Dear Addy: Back to School 2015

Dear Addy, My daughter is about to start kindergarten. How should I go about telling the teachers and administrators at her school about her hemophilia?  I want them to know how best to respond to any incidents without treating her like a Faberge egg.Signed,Off to School-Now What?! Dear Off to School,Sending a child with a […]