Caregiver Heroes: Kelly

Meet Kelly from Nevada, who has von Willebrand Disease (vWD) and Delta Granule Storage Pool Deficiency. Kelly has a 19-year-old daughter, Jacey, who has the same diagnosis as her mom; a 7-year-old daughter, Maddie, who has vWD, three sons, and a husband. We asked Kelly to share some insights on her life as a caregiver.What […]

Infusing Love: Goodbye, My Friend

Dear Port:Over the past five years you were a big part of how well I did infusing my son, Laithan. As much as he would fight me during infusions by moving around, I knew that I could always count on you to work.Don’t blame yourself for having to be removed! In five years I had […]