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Dear Addy,

I鈥檝e seen HFA鈥檚 Facebook posts about Bleeding Disorders Awareness Month. Can you tell me more about it and how I can get involved?

Signed,
Attentive Advocate


Dear Attentive,

For more than 30 years, the bleeding disorders community celebrated March as the unofficial Hemophilia Awareness Month. In 2016, this designation become official when the National Hemophilia Foundation (NHF) petitioned the US Department of Health and Human Services to have Bleeding Disorders Awareness Month included on its National Health Observances list for March. Throughout the month, national organizations like HFA and NHF, as well as local Member Organizations, spread awareness about bleeding disorders using various advocacy campaigns.

As you鈥檝e already seen, in March, HFA is posting information on Facebook daily about bleeding disorders. Share these posts and include a comment about what the content means to you. This is an easy way to increase your involvement and educate others.

HFA has also put together an advocacy calendar for the month and will be sharing tips for how you can make advocacy a part of your regular routine. Here are some highlights so you can get started now!

  • Contact your local media outlet and ask if they鈥檒l do a piece on bleeding disorders, what鈥檚 happening in the community, and why this month is important to you.
  • Want to be a stronger advocate? Volunteer! Contact your local bleeding disorders organization and learn about opportunities that fit your schedule and interests.
  • Visit the policy priorities page on HFA鈥檚 website to better understand policy issues affecting the bleeding disorders community.
  • Do you know your state and federal representatives? Find this information and how to contact them by using HFA鈥檚 Take Action Center.
  • Check out and share the Bleeder鈥檚 Bill of Rights! Created by HFA鈥檚 Care Access Working Group, this tool is intended for self-advocacy and empowerment.

Sincerely,

Addy

Have a question? Click HERE. Your name will be changed in the response.

HFA frequently receives questions from the bleeding disorders community related to advocacy issues. The questions often impact the entire community. In an effort to reach the largest audience possible with our responses to these widely applicable questions, HFA developed 鈥淒ear Addy.鈥 Questions submitted to this column are edited in order to protect privacy and should be considered educational only, not individual guidance

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