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Advocacy

Advocate (noun)Advocacy_Advocates_Work

  • one that pleads the cause of another
  • one that defends or maintains a cause or proposal
  • one that supports or promotes the interests of another

With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

If you are new to hemophilia and bleeding disorders or have years of experience championing this community, we welcome you!

Join us and let our voices be heard!

Become an advocate for yourself and for the entire community

Personal Advocacy

You are an advocate. Whether it’s talking to your doctor or educating your child’s school about bleeding disorders, advocacy can and does take place outside of state capitols and in your everyday life. Here are some tools and resources to help guide your advocacy in various “real life” situations:

  • At School
  • At Work
  • For Insurance Coverage
  • In the Emergency Room

Policy Advocacy

There are a multitude of policy issues facing the bleeding disorders community. As a grassroots organization, we support the community by providing information and tools to participate in monitoring, advocating, and supporting federal and state public policies that impact the lives of people living with bleeding disorders.

Our priorities include:

Assisting and Advocating for the Bleeding Disorders Community