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Your experiences are key to our research.

 

With the HFA Community Research Portal, HFA are developing and curating patient-centered research surveys for everyone in the bleeding disorders community.

Open and Active Surveys:

  • Tell Us About You
  • CHOICE 2.0
  • NEW: Gene Therapy & You

Several additional surveys are being developed and will be launched in the upcoming months. New surveys will be announced when they are ready.

 

Click here to enter into the HFA Community Research Portal!

Through the PCORI Eugene Washington Engagement Award, HFA launched the PRIDE Project in the Spring of 2017 to train and engage all stakeholders in the bleeding disorders community on patient-centered outcome research (PCOR) and comparative effectiveness research (CER).

Learn more about the PRIDE Project and find out how you can participate and guide future research.

CHOICE Data Dissemination:

HFA is actively working on disseminating the research finding for the original CHOICE data through research conferences and publications. If you are interested in viewing a copy of the research posters, HFA have presented, please contact us at research@hemophiliafed.org .

All of the CHOICE posters and relevant HFA Research publications can be found under Results of CHOICE.


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