Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
The holidays are upon us, and staying healthy during this season can be challenging. While this is true for the general population, it is especially important for individuals with hemophilia or other bleeding disorders. We understand the importance that activity and a healthy diet play in maintaining an ideal weight and decreasing the number of bleeding episodes […]
By offering additional resources and education about the benefits of self-care and exercise for young adults, we hope to inspire a lifetime of healthy choices and habits! Our guest on this podcast is Karen Sullivan, retired professor of Health/Fitness at Marymount University. Tune into hear Karen discuss how to build sustainable fitness habits and how to get back on […]
By offering additional resources and education about the benefits of self-care and exercise for young adults, we hope to inspire a lifetime of healthy choices and habits! Our guest on this podcast is James DeFilippi, a triathlete who tells us everything that goes into his training, from his training regimen to the technology he uses to work […]
For many of us, the biggest challenge to getting physical activity is just putting our minds to it. We all know how easy it is to talk ourselves out of something – and exercise is no exception. There are tons of ways we can keep our bodies healthy and active, so it doesn’t need to […]
Dear Addy, I’m 27 years old with severe hemophilia B. I’m caring for myself and my joints, including infusing to prevent bleeds as much as possible. As you know, with time, joints just can’t move as freely. Is there anything I can do? Do you recommend any exercises that can improve movement? Signed, Achy […]
It is important for individuals with bleeding disorders to participate in some form of physical activity. Being physically active helps to strengthen one’s muscles, bones and joints. One of the many benefits of having a strong healthy body can be a reduction in the number of bleeding episodes an individual might experience. Of equal importance […]
By Michael Zolotnitsky, PT, DPT Growing up with hemophilia made waking up with bruises, joint pain, or the inability to bear weight on my ankles a normal occurrence. Time and time again, my mother had to drive me to the local hematology clinic to have factor infused. I did not feel like a normal child. I […]
It is important for individuals with a bleeding disorder to find a form of physical activity that they enjoy. When muscles are used during exercise it helps to keep them flexible and strong. Physical activity also helps individuals to maintain a healthy weight, which keeps less stress off the joints, and has even proven to […]
Let’s face it, we are all getting older. People with hemophilia who have access to factor replacement therapy now have a normal life expectancy and are having to deal with the issues of aging. One of the most important things we can do for ourselves is to stay physically active. For individuals with hemophilia or […]
Ready to ditch the ice and snow for warmer temperatures, a sandy beach and some sun? While it is easy to sit back and relax on vacation, it is also very important to keep up your fitness routine. Schedules relax while traveling and we tend to over indulge in things that may cause us to […]
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