Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
In our family, we are open to participating in research, thinking, “if it can help our kids or help a future family or patient then we are all for it.” So when the opportunity arose to be enrolled in a trail to test long lasting factor, we jumped on it. We did our homework and […]
Have you ever signed up for something you felt you were not quite qualified for, but went ahead and did it anyway? I have, and I’m preparing to do it again.” Several years ago, when I first heard about Washington Days, I never imagined myself actively engaging with legislators. For most of my life, I […]
I am a true believer in the saying, “knowledge is power.” However, I also believe that the knowledge you attain must come from the correct source and at the right time. I have learned that this is even more true when it comes to hemophilia and motherhood. It […]
His name was Adam. And when I met him, I let out a huge sigh of relief. He was rather good-looking, and he seemed smart, strong, capable and perhaps most importantly, healthy. (Before you jump to any conclusions, this wasn’t a blind date.) My friend Carrie had introduced me to Adam. They shared a ski […]
My non-hemophilia mom friends have often say to me, “I just don’t know how you do it. I just can’t imagine raising a child with hemophilia.” I normally reply with, “my son with hemophilia is my baby, and I’ll do anything for him.” Earlier this summer, this very conversation played out between myself and HFA […]
Flip the calendar back to June 2010. It was a typical hot Virginia weekend and the baseball season was in full swing. I was in the stands as a proud parent and my husband was on the field as an assistant coach. Our son, Nicholas, 7 years old at the time, had made his first […]
When I think of summer I am reminded of my childhood spent outside playing with my friends. We’d run barefoot in grass or hang out at the pool. Sometimes I long for those days and what I realize that I miss the most is the companionship of my friends. Being a mommy is isolating sometimes, […]
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