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CHOICE Project


It's your CHOICE, it's your voice.

HFA would like to extend our heartfelt thanks to all of the people who participated in the CHOICE Project by taking the CHOICE survey. Together we learned so much during this Project because you let your voices be heard. We have the data and now we move to the analysis stage. Over the coming months we will report our findings to the community.

CHOICE_oct_2014Please know that your voices were heard. We already have begun to expand our program offerings and ramp up our advocacy efforts in specific areas based on what we learned via CHOICE. For example, our Care Access Working Group, comprised of community members, is working to develop other tools to add to the Bleeders Bill of Rights we developed and we continue to expand our Blood Sisterhood program based on feedback from women who participated in CHOICE.

We won't stop with the CHOICE Project. Using the data from the Project as a springboard, HFA hopes to engage in 2-4 research projects in 2016. As a community, we would undertake each new research project with the goal of using the end results to improve the lives of all people with bleeding disorders, including our health comes and personal advocacy capabilities.

We will need your help to succeed. Just as we did with the CHOICE survey, for which we received direct input and support from over 150 community members, we would very much appreciate the community's ongoing participation in our research efforts. We will continue to use the Participatory Action Research Method as a cornerstone to work together to undertake research projects as your input proved invaluable to making the CHOICE Project a success.

So whether it is the value of 340B programs, expanding provider education on bleeding disorders, co-morbidity care, or any of the many other issues you raised when responding to the CHOICE survey, we intend to learn all we can from the information you provided as we analysis the CHOICE data. Thank you again for your participation. Together we can continue to make great things happen.

Please feel free to contact us with any questions you might have about the CHOICE Project.

CHOICE (Community Having Opportunity to Influence Care Equity) was a project driven by Hemophilia Federation of America (HFA) and supported by the Centers for Disease Control and Prevention (CDC).

Learn more about what the CDC is doing in the area of blood disorders at 

Assisting and Advocating for the Bleeding Disorders Community