With the HFA Community Research Portal, HFA are developing and curating patient-centered research surveys for everyone in the bleeding disorders community.
Open and Active Surveys:
- Tell Us About You
- CHOICE 2.0
Recently Concluded Surveys:
- Gene Therapy & You
Several additional surveys are being developed and will be launched in the upcoming months. New surveys will be announced when they are ready. Results of our surveys are presented in research posters and through social media.
Through the PCORI Eugene Washington Engagement Award, HFA launched the PRIDE Project in the Spring of 2017 to train and engage all stakeholders in the bleeding disorders community on patient-centered outcome research (PCOR) and comparative effectiveness research (CER).
CHOICE Data Dissemination:
HFA is actively working on disseminating the research finding for the original CHOICE data through research conferences and publications. If you are interested in viewing a copy of the research posters, HFA have presented, please contact us at firstname.lastname@example.org .
All of the CHOICE posters and relevant HFA Research publications can be found under Results of CHOICE.