Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Today, the House Ways and Means, Energy and Commerce, and Education and Labor Committees’ released an 850-page health care reform proposal.聽 To read a summary, please visit the House Committee on Ways and Means website.
Serving the bleeding disorders community as HFA’s Director of Public Policy for State Affairs means spending timing far flung corners of this country. It is an honor to come to your hometown and help actualize a grassroots political agenda that will serve the needs of the community.
Some days however; present greater challenges than others.
HNC mounted it second annual lobby day bring together several dozen consumers from across North Carolina to press lawmakers on several counts. Amongst the concerns presented by community members were recent changes
Working through August recess is probably not appealing to our policy-makers. A few Republican Senators have jumped on the “let’s introduce healthcare reform legislation before June” bandwagon. Senators Tom Coburn, MD (R-OK) and Richard Burr (R-NC) and Congressman Paul Ryan (R-WI) and Devin Nunes (R-CA) have introduced health care reform legislation. The Patients’ Choice Act […]
The last couple of weeks have been exceptionally busy, I have found myself very much in a New York State of Mind. Special Kudos to Bob Fox, CEO and President of the Mary Gooley Hemophilia Treatment Center (Rochester, NY). Bob also serves as the New York Council on Bleeding Disorders, Bob took the point in […]
(BRAINTREE, MA) As the fiscal year for the state’s winds down, we find 48 of the 50 states running budget deficits. Sole-sourcing continues to be an attractive way for state government to drive down its costs with respect to specialty pharmacy. Sole sourcing, sometimes called single sourcing, is the idea that by reducing the number […]
In Maine, attempts to implement a dual source contract where two providers would service all Mainers enrolled in the state’s prescription plan “Dirigo Health.” Recent personnel changes at the Capitol in Augusta have thrown the current plan into limbo.
New York State Senators Tom Duane and Andrew Valesky have partnered to prohibit insurance carriers from charging an extra surcharge on co-pays for the most expensive medications and treatments, like factor concentrate. The bill which is still being reviewed at the committee level instructs the New York State Commissioner of Insurance
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