Advocacy News

Harry and Louise are back again

July 21, 2009

Same couple, different year…Harry and Louise are back on the advertisement campaign scene advocating from a different side.聽 The couple is known for advertisements launched against President Clinton’s health care plan in the 1990’s. On July 16, 2009 the couple was featured in an advertisement in support of reforming the health care system.聽 This time […]

Leaders lead

July 20, 2009

The world is filled with all kinds of leaders. There are those amongst us who yell, scream, cajole, and carry on in an effort to get folks to act. But there is another kind of leader, a person who goes about their work seeking little attention, motivated simply by that which is right or just. […]

“Rosa sat so Martin could march, and Martin marched so Barack could run…”

July 17, 2009

As I was sitting in the lounge at National Airport in DC, I was going through old e-mails. I found one, with the title above, as the subject. It came from an old college friend. The e-mail’s point was an important one. We as people are impatient by our very nature. Change is evolutionary. American […]

Senate HELP Committee approves health reform legislation

July 15, 2009

On July 15, 2009, the Senate Health, Education, Labor and Pensions (HELP) Committee approved the Affordable Health Choices Act with a party-line vote of 13-10.聽 The legislation (in conjunction with the yet to be released Senate Finance legislation) will eventually move to the floor for debate.聽 Please click here to read a thorough press release […]

America’s Affordable Health Choices Act of 2009

July 15, 2009

On July 14, 2009 The House Tri-Committee’s introduced H.R. 3200, a 1018-page bill, nearly 200-pages more than the draft proposal released several weeks ago.聽聽 To read the bill or a summary, please visit the Committee on Ways and Means , Committee on Education and Labor, or Committee on Energy and Commerce websites.聽 Committees will begin […]

PA Standards of Care bill advancing

July 10, 2009

Last week, the Pennsylvania House of Representatives’ Insurance Committee passed HB 620, The Hemophilia Standards of Care unanimously and without amendments. It is likely that the full House will consider the bill聽within the next several days. As a national community it is incumbent that we continue to support the efforts of the local Bleeding Disorders […]

Senator Chuck Grassley tells town hall meeting attendee “go work for the federal government” for affordable insurance

July 7, 2009

During a town hall meeting, Senator Chuck Grassley (R-IA), ranking member of the Senate Finance Committee and member of the Senate Budget Committee tells an attendee to “go work for the federal government” to obtain health insurance similar to what members of Congress have.聽 The attendee questioned why the Senator’s insurance was cheaper and better […]

What’s your question?

June 29, 2009

Obama wants to hear from you.聽 On Wednesday (July 1), Obama will answer questions submitted by people across the nation.聽 Do you have a question about health care reform?聽 Please submit your question (video,聽Facebook, Twitter, etc.)聽to the following link: KC

Congress wants to hear from you!

June 26, 2009

Congress breaks for recess beginning Monday, June 29 thru Friday, July 3 2009.聽 They are back in their home stated during this time.聽 It’s important that Congress hears from consumers.聽 The consumer perspective matters聽during such an important debate.聽 Decisions on reforming the health care system are happening now.聽 Please聽see the聽the Friday聽Update, dated June 26, 2009 […]

They Need to Hear From Us: Destiny

June 23, 2009

I learned that legislators do want to hear from me.

House Tri-Committees release a health care reform proposal

June 19, 2009

Today, the House Ways and Means, Energy and Commerce, and Education and Labor Committees’ released an 850-page health care reform proposal.聽 To read a summary, please visit the House Committee on Ways and Means website.

Gulliver’s Redux

June 14, 2009

Serving the bleeding disorders community as HFA’s Director of Public Policy for State Affairs means spending timing far flung corners of this country. It is an honor to come to your hometown and help actualize a grassroots political agenda that will serve the needs of the community.

Some days however; present greater challenges than others.

North Carolinians mount Raleigh effort for restored community supports

June 9, 2009

HNC mounted it second annual lobby day bring together several dozen consumers from across North Carolina to press lawmakers on several counts. Amongst the concerns presented by community members were recent changes

Healthcare Reform Happenings

May 31, 2009

Working through August recess is probably not appealing to our policy-makers. A few Republican Senators have jumped on the “let’s introduce healthcare reform legislation before June” bandwagon. Senators Tom Coburn, MD (R-OK) and Richard Burr (R-NC) and Congressman Paul Ryan (R-WI) and Devin Nunes (R-CA) have introduced health care reform legislation. The Patients’ Choice Act […]

HFA Road Show

May 27, 2009

The last couple of weeks have been exceptionally busy, I have found myself very much in a New York State of Mind. Special Kudos to Bob Fox, CEO and President of the Mary Gooley Hemophilia Treatment Center (Rochester, NY). Bob also serves as the New York Council on Bleeding Disorders, Bob took the point in […]

One is the loneliest number

May 20, 2009

(BRAINTREE, MA) As the fiscal year for the state’s winds down, we find 48 of the 50 states running budget deficits. Sole-sourcing continues to be an attractive way for state government to drive down its costs with respect to specialty pharmacy. Sole sourcing, sometimes called single sourcing, is the idea that by reducing the number […]

Yorkers on the watch against Tier IV

May 7, 2009

New York State Senators Tom Duane and Andrew Valesky have partnered to prohibit insurance carriers from charging an extra surcharge on co-pays for the most expensive medications and treatments, like factor concentrate. The bill which is still being reviewed at the committee level instructs the New York State Commissioner of Insurance

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