Community Voices

Rick, Jessie’s Dad

October 20, 2009

Download Rick’s Story By Rick, Jessie’s Dad My son Jesse was born on Valentine’s Day in 2001. He is now 4 years old and has severe hemophilia. It is hard to believe the amount of emotions that have transpired in the short period since his birth. Life leads us down many paths. The path of […]


October 20, 2009

Leland is a teenager with hemophilia and an inhibitor who is concerned with lifetime caps and how they affect his future in the bleeding disorders community.

Advocates in Action: The Forbes’ Family Meets President Obama

October 16, 2009

Imagine having the opportunity to visit the Oval Office and meet the President of the United States. This opportunity became a reality for 12-year old Emmanuel Forbes, who has severe hemophilia complicated by an inhibitor, his five siblings, and his parents Michael and Jane Forbes. Emmanuel was granted his wish through the Make-A-Wish Foundation. The […]

Leland Smith

October 11, 2009

Alex & Jim

October 6, 2009

Jim and Alex are two young men with hemophilia.聽 They talk about the positive impact of camp and the importance of advocating for the bleeding disorders community and themselves.

Alex & Jim

September 14, 2009

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