Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Hemophilia Federation of America (HFA) is pleased to announce that we will be hosting a 4-part Project ECHO庐聽provider education series targeting obstetricians and gynecologists (OB/GYNs) with a focus on women and bleeding disorders. Project ECHO庐 uses a virtual telementor approach and believes in the 鈥淎ll Teach, All Learn鈥 method. The series will occur on the […]
Hemophilia Federation of America (HFA) is pleased to offer free聽Mental Health First Aid聽training through an internationally renowned program by the聽National Council for Behavioral Health聽as part of HFA鈥檚 Mental Health and Wellness Initiative. Participants who complete both sections of the course will receive a Mental Health First Aid certificate indicating they have been trained in recognizing […]
October 27 – 30 Lansdowne Resort聽| 44050 Woodridge Parkway |聽Leesburg, VA 20176 APPLY TODAY Since 2006, HFA has addressed the complex health complications of adult men with bleeding disorders by providing the Blood Brotherhood Program. This program offers a safe environment in which adults who identify as male with bleeding disorders can share their experiences […]
In August, HFA鈥檚 Educational Webinar will focus on people with Inhibitors and people with Acquired Hemophilia. Did you know that if you have Acquired Hemophilia your body鈥檚 immune system forms antibodies against your own clotting factor? If you or your child has an inhibitor, your immune system forms antibodies against infused factor. The reality of […]
HFA is pleased to announce the hiring of Barbra Kavanaugh, a seasoned non-profit business executive, as Interim CEO. 聽 Barbra Kavanaugh has served as an interim executive in several metro DC non-profit organizations, after decades as a leader in both non-profit and public sectors. She is also the Director of the Interim Executive Network聽 鈥淭he […]
Too often our bleeding disorders community becomes segmented. While we all either have a bleeding disorder, or have loved ones with a bleeding disorder, there are many diverse life experiences that make up our world. Join HFA and a panel of bleeding disorders community members to hear uplifting stories, share common experiences, and to weave […]
Hemophilia Federation of America (HFA) is pleased to announce that we will be hosting a 4-part Project ECHO庐聽provider education series targeting obstetricians and gynecologists (OB/GYNs) with a focus on women and bleeding disorders. Project ECHO庐 uses a virtual telementor approach and believes in the 鈥淎ll Teach, All Learn鈥 method. The series will occur on the […]
At Hemophilia Federation of America, our bedrock principle is and always will be “access:” access to all safe and effective care and treatments for bleeding disorders, as well as access to the quality coverage that pays for such care. Reproductive care is essential to the health of all women 鈥 and is particularly important to […]
HFA is proud to welcome our 2022 Policy & Government Affairs Interns to Washington, DC for the summer! Brian and David will spend the next 10 weeks working in our DC offices, learning about all we do here at HFA. Over the summer, we will share blogs from both interns as they share their experiences. […]
During Symposium 2022, we hosted our annual On the Horizon sessions. Several attendees asked great questions, so we assembled the questions and answers for you here.聽For more information on these topics, please visit the Current, New, and Emerging Therapies courses in HFA鈥檚 Learning Central鈥檚 University section. Enjoy! Question Answer Isn鈥檛 NovoSeven used for acquired hemophilia? […]
2022 application is now open. Could you use $1000 to gain a skill or certification to help you get a job? Are you an adult (age 18 – 64) with a bleeding disorder? You may be eligible for an HFA Job Readiness Grant! From bookkeeping to blogging, Scrum Master to Salesforce Administrator, coder to Certified […]
Introducing our Job Readiness Grant Recipients Have you ever faced a barrier to employment because of your bleeding disorder or financial issues? Meet the recipients of HFA’s 2021 Job Readiness Grants. To learn more, visit our Job Readiness grants page. Ahmed Tareq Al Badri,聽Six Sigma Green Belt Certification I want to thank you for giving […]
Save This Page With growing instances of mental health emergencies, it is important to know the warning signs of a mental health crisis in ourselves and our loved ones. This helpful handout provides valuable information on spotting the signs and what to say (and not say) when someone needs immediate help. Quick Links to Mental […]
(Because Milds Matter Too!) When: Tuesday, March 8 from 7:00 鈥 8:00 pm EST This webinar is for patients, caregivers, and providers and includes all mild bleeding disorders such as vWD, hemophilia, platelet disorders, rare bleeding disorders, and those who consider themselves carriers or symptomatic carriers. Mild bleeding disorders are sometimes regarded as less serious, […]
As our nation celebrates Black History Month, the Hemophilia Federation of America would like to recognize the contributions of Black Americans within the bleeding disorders community. This month, we will amplify the stories of Black community members and hope you鈥檒l celebrate them with us. We recognize our society still has many challenges to address, but […]
In an effort to make research findings more accessible to patients and caregivers in the bleeding disorders community, HFA is inviting you to disseminate your research findings to community members in an atmosphere that encourages one-on-one opportunities for dialogue. Our Research Poster Session, in which presenters will be able to interact with attendees in person, […]
On Tuesday, February 8 from 7:00 – 8:30 pm ET, HFA will present 鈥淏arriers to Diagnosis: Women with X-linked Diseases鈥 in partnership with Remember the Girls and the National Organization for Rare Diseases (NORD). A ubiquitous belief among medical professionals is that all X-linked diseases are recessive, meaning a person would need two genetic mutations […]
WASHINGTON, DC, December 20, 2021 —聽The Hemophilia Federation of America (HFA) offers monthly educational webinars for patients, caregivers and healthcare providers and is launching their 2022 series on January 18 at 7:00 pm ET with Dr. James Luck, Jr.,聽Director of Surgical Services at the Orthopaedic Institute for Children at UCLA Health. Dr. Luck will discuss聽joint […]
Blood Brotherhood Our Blood Brotherhood program is designed to empower adult men living with bleeding disorders. This nationwide network of men educates, supports and challenges each person as they strive to live healthier lives. Join us as we discuss issues facing adult men in our community. Join the Blood Brotherhood Chat Sister Space Join your […]
Inherited bleeding disorders, such as hemophilia and von Willebrand disease, have long been underrecognized as causes for bleeding in females. Part of the problem with this under recognition has been the lack of female engagement in research related these bleeding disorders. Through The Patient-Centered Outcomes Research Institute (PCORI) funded engagement project, the PRIDE […]
FOR IMMEDIATE RELEASE聽 Media Contacts Ilana Ostrin, National Hemophilia Foundation iostrin@hemophilia.org 212-328-3769 Meghan Lawton, Hemophilia Federation of America m.lawton@hemophiliafed.org 607-423-4496 National Hemophilia Foundation and Hemophilia Federation of America Partner for 鈥淭ogether Project鈥 New partnership kicks off with a focus on mental health New York, NY/Washington, D.C.鈥 Today, the National Hemophilia Foundation (NHF) joins the Hemophilia […]
September is Suicide Prevention Awareness Month HFA has established a partnership with the American Foundation for Suicide Prevention. There are resources available at the local level and outreach being done in September in particular to address the increasing levels of suicide across the country. Additional Resources Information on聽how to reach a local chapter Information on聽Talk […]
Hemophilia Federation of America acknowledges that our staff and the bleeding disorders community hold many identities and experience oppression and biases, including the very real impact of systemic racism and racial prejudice. As an organization, we reject all forms of racism and vow to uphold an anti-racist culture. We recognize that it requires ongoing examination […]
Summer鈥檚 wrapping up and many children, like yours, are preparing to return to school, or to go to school for the first time. If the thought of your child going back to school fills you with dread, you are not alone. It is normal to feel stressed as you assist your child with their transition […]
Summer鈥檚 wrapping up, and many young adults, like you, are preparing to return to their college campus, or to step foot on campus for the first time. If the thought of going back to school fills you with dread, you鈥檙e not alone. It鈥檚 normal to feel stressed or lonely sometimes, especially as you transition away […]
Call for Poster Abstracts In an effort to make research findings more accessible to patients and caregivers who have an interest and who participate in research projects and initiatives, HFA is inviting you to disseminate your research findings to patients and/or their caregivers in an atmosphere that is comfortable and encourages one-on-one opportunities for questions […]
Looking for an evening of family fun? Join HFA and Beyond Recreation as we bring you All Out Break Out, an interactive evening of family fun and friendly competition with other families in the bleeding disorders community! Date & Time Wednesday, August 4, 2021 at 7:00 pm ET A box of activity supplies will be […]
The HFA team is excited to welcome a new group of students to our summer 2021 internship program! They will be participating in our annual Advocacy internship virtually, developing their passion in health care policy and self-advocacy. They will be participating in regular webinars and online training about legislative, policy and advocacy issues, learning more […]
The Hemophilia Federation of America and the National Hemophilia Foundation are pleased to share a new partnership called the Together Project. Through the Together Project, HFA and NHF will work collaboratively on important issues that affect the bleeding disorders community. The first collaboration is focused on mental health and wellness in the bleeding disorders community, […]
Hemophilia Federation of America (HFA) and the National Hemophilia Foundation (NHF) are teaming up to offer an educational webinar to review all the benefits of the new American Rescue Plan聽law enacted in March 2021. If you buy your own health insurance (on- or off-Marketplace), or if you have recently lost your job, you may qualify […]
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