HFA News

Share Your Voice

June 26, 2009

The Voices Campaign is HFA’s grassroots advocacy initiative aimed at raising general public and legislator awareness of the bleeding disorders community through personal stories from affected individuals and their families.聽 In the approaching national debates regarding health care reform, HFA wants to ensure the bleeding disorders community is heard, and through the Voices Campaign, members […]

Press Release: HFA Voices Campaign Gaining Momentum

June 25, 2009

June 25, 2009 Washington DC: Hemophilia Federation of America’s (HFA) grassroots “Voices Campaign” recently launched at the 2009 Educational Symposium in Indianapolis, IN is gaining momentum by collecting powerful stories from community members. “Now is the time for action.聽 As individuals and as a community, we must be accountable and make every effort to get […]

Real People DENIED Real Healthcare: Nathan Wilkes

May 1, 2009

Thomas Wilkes was born with severe hemophilia

Press Release: Hemophilia Federation Adds State Policy Expertise

April 13, 2009

April 13, 2009 Washington, DC:聽 Hemophilia Federation of America (HFA) is proud to welecome Stephen May in the newly created leadership position of Public Policy, State Affairs. The position was created to ramp up state-level advocacy diligence in response to community concerns of an ever-changing, turbulent healthcare landscape. The position’s responsibility includes pro-active public policy […]

Press Release: HFA receives $10,000 CSL Behring LEAD Grant

April 6, 2009

April 6, 2009

Washington, DC: Hemophilia Federation of America (HFA) has received a $10,000 grant from CSL Behring to fund its Legislative Action Center.
HFA is a nonprofit organization serving the bleeding disorders community. Established in 1994, the organization has offered programming and grassroots advocacy on behalf of its individual members and its twenty-nine member organizations.
The CSL Behring Local Empowerment Grant will be used to provide the community the Legislative Action Center tool (Capwiz) on the Hemophilia Federation website.

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