News & Perspectives

Gulliver’s Redux

June 14, 2009

Serving the bleeding disorders community as HFA’s Director of Public Policy for State Affairs means spending timing far flung corners of this country. It is an honor to come to your hometown and help actualize a grassroots political agenda that will serve the needs of the community.

Some days however; present greater challenges than others.

North Carolinians mount Raleigh effort for restored community supports

June 9, 2009

HNC mounted it second annual lobby day bring together several dozen consumers from across North Carolina to press lawmakers on several counts. Amongst the concerns presented by community members were recent changes

Healthcare Reform Happenings

May 31, 2009

Working through August recess is probably not appealing to our policy-makers. A few Republican Senators have jumped on the “let’s introduce healthcare reform legislation before June” bandwagon. Senators Tom Coburn, MD (R-OK) and Richard Burr (R-NC) and Congressman Paul Ryan (R-WI) and Devin Nunes (R-CA) have introduced health care reform legislation. The Patients’ Choice Act […]

HFA Road Show

May 27, 2009

The last couple of weeks have been exceptionally busy, I have found myself very much in a New York State of Mind. Special Kudos to Bob Fox, CEO and President of the Mary Gooley Hemophilia Treatment Center (Rochester, NY). Bob also serves as the New York Council on Bleeding Disorders, Bob took the point in […]

One is the loneliest number

May 20, 2009

(BRAINTREE, MA) As the fiscal year for the state’s winds down, we find 48 of the 50 states running budget deficits. Sole-sourcing continues to be an attractive way for state government to drive down its costs with respect to specialty pharmacy. Sole sourcing, sometimes called single sourcing, is the idea that by reducing the number […]

Money, Money, Money, Money…

May 14, 2009

In Maine, attempts to implement a dual source contract where two providers would service all Mainers enrolled in the state’s prescription plan “Dirigo Health.” Recent personnel changes at the Capitol in Augusta have thrown the current plan into limbo.

Yorkers on the watch against Tier IV

May 7, 2009

New York State Senators Tom Duane and Andrew Valesky have partnered to prohibit insurance carriers from charging an extra surcharge on co-pays for the most expensive medications and treatments, like factor concentrate. The bill which is still being reviewed at the committee level instructs the New York State Commissioner of Insurance

Real People DENIED Real Healthcare: Nathan Wilkes

May 1, 2009

Thomas Wilkes was born with severe hemophilia

BioRx Employees Climb Mt. Rainer to Raise Money

April 28, 2009

Cincinnati, Ohio (April 28, 2009) 鈥斅犅 On August 5, 2009, two BioRx employees, Jeff Salantai and Eric Hill, will climb Mt. Rainier as part of a national fundraiser called Summit For Someone.聽 The fundraiser benefits at-risk inner city youth who do not have the privilege of experiencing life outside the city.聽 Plus, all proceeds exceeding […]

Press Release: Hemophilia Federation Adds State Policy Expertise

April 13, 2009

April 13, 2009 Washington, DC:聽 Hemophilia Federation of America (HFA) is proud to welecome Stephen May in the newly created leadership position of Public Policy, State Affairs. The position was created to ramp up state-level advocacy diligence in response to community concerns of an ever-changing, turbulent healthcare landscape. The position’s responsibility includes pro-active public policy […]

Press Release: HFA receives $10,000 CSL Behring LEAD Grant

April 6, 2009

April 6, 2009

Washington, DC: Hemophilia Federation of America (HFA) has received a $10,000 grant from CSL Behring to fund its Legislative Action Center.
HFA is a nonprofit organization serving the bleeding disorders community. Established in 1994, the organization has offered programming and grassroots advocacy on behalf of its individual members and its twenty-nine member organizations.
The CSL Behring Local Empowerment Grant will be used to provide the community the Legislative Action Center tool (Capwiz) on the Hemophilia Federation website.

Matrix Health Releases Activity Book for Kids

January 29, 2009

Ft. Lauderdale, Florida – January 2009 – Matrix Health Group is pleased to announce the release of a new children’s activity book entitled Time for Fun!. The book’s focus is to educate children up to the pre-teen years about the many facets of life with a bleeding disorder. Featuring numerous activities in a colorful and […]

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