Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Anyone who knows me or has read any of my previous blogs, knows that our household basically revolves around baseball. If the weather is nice and I鈥檓 not at work, I鈥檓 at the baseball field. Sometimes it makes life a little crazy, but it makes Nick really happy and that is what鈥檚 most important. My […]
Until recently my husband and I didn鈥檛 realize how alone Chris felt growing up with hemophilia. He had support from family, friends, coaches, teammates, the treatment staff, and us. Yet he didn鈥檛 have anyone to talk with that really understood what it was like to have hemophilia. We tried our best to not treat Chris […]
CSL Behring’s Gettin’ in the Game program, like our FitFactor program, encourages patients with hemophilia, von Willebrand disease (vWD), and other bleeding disorders to become active and stay active, touting the physical and mental benefits of sports and other activities. Recently, CSL Behring held their 13th Junior National Championship program, an annual golf and baseball […]
Flip the calendar back to June 2010. It was a typical hot Virginia weekend and the baseball season was in full swing. I was in the stands as a proud parent and my husband was on the field as an assistant coach. Our son, Nicholas, 7 years old at the time, had made his first […]
Sign up for E-mails, Dateline Magazine, and other ways to stay connected.