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Dear Addy: Advocacy Leadership Council

December 24, 2018

Dear Addy, I’m the parent of a hemophiliac and I’d like to become more involved in advocacy work to support my child and the bleeding disorders community at-large. Does HFA have any advocacy programming available for parents? Signed, Active Advocate   Dear Advocate, Yes! HFA recently announced the creation of a new Advocacy Leadership Council. […]

Infusing Love: Not “Just a Mom”

April 1, 2015

The candidates for the HFA Board of Directors Executive Committee were asked to record a short video to share rather than a written resume this year. I thought it was a great idea until I realized that I had to do it too.  I totally dragged my feet for a few weeks until I reached […]


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