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CDC Webinar: New Challenges in Hemophilia

April 8, 2014

On Thursday, April 3, 2014 the Centers for Disease (CDC) control hosted an informative and important webinar about new challenges facing the hemophilia community. If you missed it, take a look at Dr. Guy Young, Director of the Hemostasis and Thrombosis Center at Children’s Hospital Los Angeles, presentation slides聽about about the impact of: overweight and […]

(You Gotta) Fight for Your Right (to Party)

January 8, 2014

Nora unknowingly opened a floodgate when she did not share some candy with Thomas one afternoon. He got super moody. I left it alone for a bit, but I could hear him trying not to cry in the backseat of the car. When we pulled in the driveway, I sent the girls inside and asked […]

Changes in Latitude of My Attitude & Gratitude

November 27, 2013

I think Thanksgiving gets more hype than it should. It starts at an early age 鈥 we encourage preschoolers to make construction paper turkeys from their hands and write what they are thankful for on the 鈥渇eathers.鈥 Elementary and middle school students express their gratitude in the form of coat or canned food drives at […]

The Fighter

July 31, 2013

By Sonji Wilkes Several summers ago, I signed the kids up for swim lessons to help keep them busy during summer break. A couple of years later, after once-a-week, year-round lessons, they had progressed to a point where I was brave enough to sign them up for a local swim team.聽 I was thrilled; they […]

That Almost Never Happens

March 6, 2013

                At the very first meeting we had at the Hemophilia Treatment Center (HTC) when Thomas was a week old, Nathan asked the HTC team, “Does the medicine ever stop working? Can you build up antibodies to it?” Not wanting to worry us and having a good track […]


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