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Journal of Blood Medicine: Inhibitor Challenges

August 26, 2014

Inhibitors are antibodies that the immune system develops because it sees the infused clotting factor as a foreign substance that needs to be destroyed. Antibodies are proteins that eat up the activated factor before it has time to stop the bleeding. Approximately 30% of people with severe Hemophilia A are affected by inhibitors at some […]

Penn Research Could Improve Hemophilia Treatment

July 17, 2014

*This article was originally posted on July 17, 2014 in聽Penn Current聽and was written by聽Katherine Unger Baillie.聽Click here to read this article in its entirety. ____________________________________ Hemophilia is a rare but potentially dangerous disease. People with the condition produce very low levels of clotting factor, the proteins in blood that stop bleeding and help begin the […]

We Did Not Fail Treatment, It Failed Us

May 20, 2014

When my son Matthew was born with severe Hemophilia A in 1994, I thought I was prepared. I had been raised by a Dad with hemophilia, lost him to HIV in 1986, and had thoroughly researched product safety prior to deciding to give birth to my son. I had prenatal testing done and knew that […]

CDC Six-Year Inhibitor Study Released

May 16, 2014

The journal Haemophilia has published the results of a six-year study called the Hemophilia Inhibitor Research Study (HIRS) that was designed to test the feasibility of conducting national monitoring for inhibitors among people with hemophilia in the United States. The study collected blood specimens on a regular basis from study participants, which were tested at […]

CDC Webinar: New Challenges in Hemophilia

April 8, 2014

On Thursday, April 3, 2014 the Centers for Disease (CDC) control hosted an informative and important webinar about new challenges facing the hemophilia community. If you missed it, take a look at Dr. Guy Young, Director of the Hemostasis and Thrombosis Center at Children’s Hospital Los Angeles, presentation slides聽about about the impact of: overweight and […]

(You Gotta) Fight for Your Right (to Party)

January 8, 2014

Nora unknowingly opened a floodgate when she did not share some candy with Thomas one afternoon. He got super moody. I left it alone for a bit, but I could hear him trying not to cry in the backseat of the car. When we pulled in the driveway, I sent the girls inside and asked […]

Changes in Latitude of My Attitude & Gratitude

November 27, 2013

I think Thanksgiving gets more hype than it should. It starts at an early age 鈥 we encourage preschoolers to make construction paper turkeys from their hands and write what they are thankful for on the 鈥渇eathers.鈥 Elementary and middle school students express their gratitude in the form of coat or canned food drives at […]

The Fighter

July 31, 2013

By Sonji Wilkes Several summers ago, I signed the kids up for swim lessons to help keep them busy during summer break. A couple of years later, after once-a-week, year-round lessons, they had progressed to a point where I was brave enough to sign them up for a local swim team.聽 I was thrilled; they […]

That Almost Never Happens

March 6, 2013

                At the very first meeting we had at the Hemophilia Treatment Center (HTC) when Thomas was a week old, Nathan asked the HTC team, “Does the medicine ever stop working? Can you build up antibodies to it?” Not wanting to worry us and having a good track […]

New England Journal of Medicine Publishes Results of Study on Anti-Inhibitor Coagulant Prophylaxis in Hemophilia Patients with Inhibitors

November 4, 2011

The following is an excerpt from an article published in the New England Journal of Medicine. Read the full article here. Summary After exposure to factor VIII, alloantibodies (inhibitors) that neutralize factor VIII clotting function develop in approximately 30% of patients with severe hemophilia A.1 The development of high-titer factor VIII inhibitors (>5 Bethesda units […]


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