Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
On May 24, 2017, we hosted our 4th Annual Patient Fly-In in Washington, DC聽alongside an online聽Virtual Hill Day. As they consider HR 1628, the American Health Care Act (AHCA), the Senate has indicated that they intend to start from scratch on health reform and they need to hear from their constituents when crafting their plan. […]
Earlier this month, Jackson and I attended the Ohio Statehouse Days hosted by the Ohio Bleeding Disorder Council. This was a time for families and individuals with bleeding disorders to meet with their senators and representatives to talk about issues and legislation that is vital to our community. This is the third year that we […]
Last week, Ohio Governor Ted Strickland vetoed the formation of a new Hemophilia Advisory Committee saying that one existed as a matter of Ohio law and had been dormant for years, and as such the new measure was redundant. In聽Georgia, Governor Roy Barnes delivered a veto this month to a measure that would have created […]
In Maine, attempts to implement a dual source contract where two providers would service all Mainers enrolled in the state’s prescription plan “Dirigo Health.” Recent personnel changes at the Capitol in Augusta have thrown the current plan into limbo.
Sign up for E-mails, Dateline Magazine, and other ways to stay connected.