Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
With a new diagnosis of hemophilia my world was turned upside down. What’s only been 4 months since Maddox was diagnosed feels like a year or two. I feel like I’ve grown so much in just a few months. I have put my life vest on and jumped right in. While, sometimes I鈥檓 afraid […]
Dear Port: Over the past five years you were a big part of how well I did infusing my son, Laithan. As much as he would fight me during infusions by moving around, I knew that I could always count on you to work. Don鈥檛 blame yourself for having to be removed! In five years […]
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