Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
We very nearly spent Christmas in the hospital last year, when Thomas developed a port infection the week before. If you think December is a crazy time of year, try adding in a long hospital stay – you quickly realize how much you aren’t getting done while you sit by your kid’s bedside. I had […]
Choices are important to the Cleghorn family. Before their son Nicolas was born, Tracy and Lance Cleghorn envisioned a world of possibilities for him. “I want him to do whatever he wants to do, whether that’s play football, play rugby, place lacrosse…” says Tracy. “I want him to make that choice. I don’t want that […]
The Cleghorn family shares their story of having a young child with hemophilia. They talk about prophylaxis treatment and transitioning from a portacath to to a vein.
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999 N Capitol Street NE Suite 301
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Email: info@hemophiliafed.org
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