Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Hemophilia Federation of America is aware of a drastic increase in social media targeting members of the bleeding disorders community on a number of initiatives. Wanting the best for the community, HFA encourages the community to be vigilant and cautious when interacting on social media platforms. While HFA respects the rights of each individual to […]
鈥淪o, he鈥檚 still wearing the helmet?鈥 The question, posed by HTC staff at our recent annual visit, gave me pause. Yes, my son is almost 5 years old and still wearing his helmet any time his feet are on the floor. I know this is a controversial topic. I鈥檝e seen the comment threads on many […]
Dear Addy, I often hear about using social media to engage policymakers and spread awareness to friends. Does this really work? How can I advocate on social media without being annoying or preachy? Signed, Social Media Maven Dear Maven, Social media can be an excellent platform to raise awareness for an issue or cause you […]
Dear Addy, My new year鈥檚 resolution is to be a stronger advocate for the bleeding disorders community. How do I reach people and where can I find information to share? Signed, Want to Be the Change Dear Change, You came to the right place! HFA has several resources available for people to increase their awareness […]
For those of us with children who have their own cell phones, how many times a day do you say, 鈥淕et off the phone!鈥 or 鈥淧ut the phone down!鈥? But I challenge you to think about yourself: How many things are you doing right now? Other than reading this blog 鈥 one, two, three more […]
I was recently asked about being a single mom and, more specifically, whom I consider my support system.聽 I have no family living in the state of Mississippi with me.聽 My closest family members are actually four hours away.聽 I鈥檝e been here a couple years now, and my son Micah and I just love this […]
Reid talks about growing up with hemophilia and the importance of education, self advocacy and social media advocacy.
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CONTACT HFA
999 N Capitol Street NE Suite 301
Washington, D.C. 20002
Phone: 202.675.6984
Fax: 202.675.6983
Email: info@hemophiliafed.org
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