Inspirational quotes appear in lots of different places in our lives: on social media, public service announcements, classroom posters, the bulletin board in the break room at work. Prior to becoming a mom, I rarely gave them a second thought – they were simply filler and not something I spent much time pondering. As I began to learn how to raise a child with hemophilia, those quotes started popping into my mind more and more. I would have a rough morning with the kids and think, “What doesn’t kill you makes you stronger,” and somehow, I’d suddenly have the strength to muster through another infusion attempt or clean up the fifth bowl of spilled cheerios, which most moms would agree are equally frustrating. I began noticing that many of the sayings revolved around strength:
“You never know how strong you are until being strong is the only choice you have”
 “You were given this life because you are strong enough to live it”
“Tough times don’t last. Tough people do.”
As much as I had thought those sayings were only words in the past, they became mantras for me as a young mother. I used them to build up courage and toughness in the face of a new diagnosis and a sometimes hard life. They were reminders that I could handle everything motherhood and hemophilia had to throw at me.
For a long time, I lived and breathed the persona of being a strong person. No matter what adversities we faced as a family, I was the strong one – I was the mom – I had to hold it together. The fact of the matter is no one is that strong. We all have our breaking points. Mine came as I sat in a hospital room, staring down at my sleeping son, who had just experienced some heart-breaking, excruciating pain. It was the middle of the night and my husband and I had valiantly tried to keep Thomas comfortable at home, treating a bleed around the clock, but it had been too much. The emergency room staff finally got Thomas comfortable enough to sleep and all I could do was gently brush his hair off his face. The bleed and pain were under control so, theoretically, I should have been relieved, but tears streamed down my face. I was exhausted; not from the sleep deprivation, but from trying to maintain a ridiculously high standard of bravery and toughness. An ER nurse walked in to check on Thomas and caught me wiping tears. She patted my shoulder and said, “You cry not because you are weak, but because you have been strong for too long.” She smiled and walked out of the room leaving me to think about that.
Another pearl of wisdom featuring strong…but this one came with a reminder that even the tough need to give themselves a break once in awhile.
Sonji Wilkes nació y se crió en Carolina del Norte, donde durante la escuela secundaria desarrolló una apreciación por el voluntariado y el servicio comunitario. Se graduó Magna Cum Laude con una licenciatura en ciencias del comportamiento del Colegio Estatal Metropolitano de Denver en 2001. Sonji trabaja como voluntaria en la comunidad de trastornos hemorrágicos y fue seleccionada como voluntaria del año de la Fundación Nacional de Hemofilia en 2006. Sonji, su esposo Nathan y sus tres hijos: Nora (11), Thomas (9) y Natalie (7), residen actualmente en Colorado.
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*Nota: "Infusing Love: A Mom's View" es una colección de blogs de opiniones personales y una representación de las experiencias individuales. Si bien se realizan grandes esfuerzos para garantizar la precisión del contenido, las entradas del blog no representan a HFA ni a su Junta Directiva. El blog tampoco pretende ser interpretado como consejo médico o la opinión/posición oficial de HFA, su personal o su Junta Directiva. Se recomienda encarecidamente a los lectores que analicen su propio tratamiento médico con sus proveedores de atención médica.
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