Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
My first baby was also my first baby with a bleeding disorder. My husband and I did not know this while he grew inside of my body. So instead of learning about factor products, ports, or how to keep him bleed free, I read about natural childbirth, how to make my own baby food, what […]
I get some pretty stunned responses when I tell family and friends that I am grateful for hemophilia. They can’t understand how it is possible that I can be thankful that my son, Thomas, has unexpected, ill-timed, and painful bleeds. How could anyone find good in dealing with a nonsensical insurance company? Obviously, I could […]
No importa en la circunstancia en que nos encontremos siempre tenemos una razón por la cual estar agradecidos. A lo largo de mi carrera como maestra de escuela elemental por más de 15 años y ahora como coordinadora de programas en HFA, he tenido la oportunidad de conocer a muchas personas. Maravillosas personas con características […]
I was at the craft store the other day looking for Thanksgiving dessert plates and napkins; instead I found Christmas decorations from corner to corner. I asked a sales associate where I could find the fall or Thanksgiving related décor. To my disappointment it had all been removed the day after Halloween. My quick retort […]
It’s said that everything happens for a reason. Someday you’ll look back on this and be thankful. You’ll be able to see what it’s taught you. When my daughter and I were first diagnosed with Platelet Storage Pool Disorder (PSPD), I had a hard time finding the good in anything amidst all the frightening doctor […]
What are you grateful for? If you’re like me, it varies somewhat day-to-day. We all probably have a standard “set” of items we’re grateful for – our family, friends, jobs, etc. But outside of those – it really can vary from one day to the next. Some days I’m grateful for my dog – he […]
Sign up for E-mails, Dateline Magazine, and other ways to stay connected.