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Infusing Love: Let Them Hurt

March 17, 2021

  Let鈥檚 talk about losing a child. I know, not a feel-good topic, but one I鈥檓 living with right now. The reason I blog, the reason I know why I even know about my own bleeding disorder is because I had a son. I say 鈥渉ad鈥 because he died on Jan. 1, 2021. His name […]

Infusing Love: Mental Health is More Than Just a Buzz Phrase

March 10, 2021

Happy 2021 everyone! With this New Year comes a lot of hope and promises. It was a long 2020 with many life changes and stresses. I am the mother of a 28-year-old son, Michael, with severe hemophilia B and inhibitors due to allergic reactions to all factor 9 products. I know that sounds very stressful […]

Infusing Love: El Deporte Para Su Salud

February 23, 2021

Como saben soy mama de un ni帽o de 11 a帽os con hemofilia. Cuando mi ni帽o fu茅 creciendo empez贸 a aumentar de peso y en ocasiones presentaba dolores en sus tobillos. Yo como mam谩 s煤per protectora, (s铆 lo acepto, tengo que trabajar conmigo misma para no transmitirle miedo a mi ni帽o) no consideraba ning煤n deporte como […]

Infusing Love: From My Son鈥檚 Point of View

February 10, 2021

It鈥檚 been a year since the first case of COVID-19 was reported in the United States. The ever-evolving coronavirus situation can be a bit intimidating. With social distancing and quarantine are becoming frequent vocabulary words in our everyday conversations. The whole thing can feel downright overwhelming. Answer me this question鈥hen did feeling exhausted and overwhelmed […]

Infusing Love: Asomos de romance inesperados

February 3, 2021

Mi esposo y yo nunca pensamos que terminar铆amos el uno con el otro como compa帽eros de vida. Ten铆amos en com煤n que los dos est谩bamos haciendo segundos bachilleratos en m煤sica en el Conservatorio. Fue all铆 donde nos conocimos, pero en todo lo dem谩s, parec铆amos ser totales opuestos. A pesar de mi estatura sobre promedio, yo era […]

Infusing Love: Un a帽o nuevo saludable

January 13, 2021

隆Hola, mis queridas madres y Feliz a帽o nuevo para todas! 驴Has notado el cambio en las preferencias en alimentos en los 煤ltimos a帽os? Hoy les hablar茅 de lo beneficioso que es comer saludable.聽 De porque tener h谩bitos alimentarios saludables nos alarga la vida para disfrutar a nuestras futuras generaciones. Nuestros h谩bitos alimentarios, en gran medida, […]

Infusing Love: A Pillar of Strength

January 6, 2021

The staff of Hemophilia Federation of America and Infusing Love: A Mom’s View bloggers extend condolences to Maryann on the death of her son, Max. There are times as a hemophilia mom that you feel as though you can handle anything, like you could take on the world and make it a better place.聽Then there […]

Infusing Love: Cirug铆a en Tiempos de Pandemia

December 30, 2020

隆Saludos nuevamente a todas las extraordinarias mam谩s de nuestra comunidad, un fuerte abrazo desde la distancia! Para los que no me conocen, tengo un ni帽o de 11 a帽os con hemofilia A, que se llama Iv谩n Manuel.聽Hoy les escribo, pensando en los diferentes retos que esta pandemia nos ha tra铆do a nuestras vidas. Desde los estudios […]

Infusing Love: 驴El Amor Da Empoderamiento?

December 9, 2020

Hola, mis amigas de Infusing Love Moms Blog. Soy Ana, madre de un hijo con hemofilia Tipo B, deficiencia de Factor IX moderado y vivo en El Paso, Texas. Hoy quiero platicar con ustedes de el amor, el agradecimientoy el perd贸n. El amor es, quiz谩, el sentimiento mas hermoso que el ser humano pueda experimentar. […]

Infusing Love: Boys to Men

November 25, 2020

  I have been 鈥淚nfusing Love鈥 into my son Marques for the past 18 years! I have not only been infusing him with factor, so his blood clotting levels are normal, but I have tried to infuse him with the education he needs to live a long life with hemophilia. I pray! As hemophilia moms, […]

Infusing Love: My Quarantine Teaching Experience

October 28, 2020

Remote learning causes concerns for students with disabilities.聽Because of COVID-19, I found myself using technology as I teach and learn.聽I used to take for granted toilet paper, paper towel, hand sanitizer, rubber/paper gloves, rubbing alcohol, bleach and masks because it was always there at my reach. Now I have found myself shopping for these things. […]

Infusing Love: The Other Side Effects

October 21, 2020

There are new bleeding disorder side effects cropping up all the time. By side effects, I mean the extraneous things we have to manage such as insurance, genotyping and product choice. In a time before all the advancements, a side effect was learning to be an IV nurse and find a vein on a toddler,聽 […]

Infusing Love: All the Adult Things

August 13, 2020

My son, Michael, has severe hemophilia B. He is soon to be 28 years old. Wow! That time flew by! I remember the day we found out he had hemophilia. He was 11 days old. We were shocked, scared and ready to take on this challenge life had given us.聽 We educated ourselves and our […]

Infusing Love: We Are Strong!

August 4, 2020

Strong. Every January I reflect on the year to come. I chose a word based on something personal, either to myself or to our family. This year I chose the word: Strong. I chose that word specific to my goals for the year. I鈥檝e been a consistent runner since 2015. In fact, I love it […]

Infusing Love: The Power of Symposium

July 29, 2020

  Attending HFA鈥檚 Symposium has always fascinated me. I have attended a few symposiums with my family: St. Louis, Cleveland, Las Vegas, and San Diego. During symposium, I networked with individuals who were in various fields: social workers, physicians, nurses, physical therapists, and patients.聽 Days were filled with inspirational kickoff and educational breakout sessions. There […]

Infusing Love: How Do Moms 鈥淒o鈥 a Virtual Symposium?

July 15, 2020

  We are now four or five months into this very bizarre time of the COVID-19 Pandemic. If you鈥檙e like me, 聽you鈥檙e not getting any more used to this 鈥渘ew normal鈥 but rather more than ever, ready for it to be over. While we may be ready to get back to life the way it […]

Infusing Love: You Are Missed

July 1, 2020

You know what I miss? You. I miss you. I miss looking into your eyes, I miss tearing up when I try to explain my struggles and listen to yours. I miss smiling with you when I tell you about my adventures and you tell me yours. I鈥檝e been a part of the bleeding disorder […]

Infusing Love: Pay It Forward

June 10, 2020

鈥淓veryone can be great because everyone can serve.鈥 鈥 MLK Jr. 鈥淪ervice to others is the rent you pay for your room here on earth.鈥 鈥 Mohammed Ali Volunteering is gift. It can be the best things you鈥檒l do 鈥 both for your community and you. For me, there are mental health benefits in getting […]

Infusing Love: La casa y el sal贸n llenos del virus

June 3, 2020

  Un plato lleno de virus y un poco de brillantina es todo lo que se necesit茅 para explicar a mis ni帽as la importancia de lavarse las manos. Cuando mis hijas eran peque帽as enfatizaba fielmente en la importancia de lavarme las manos con agua y jab贸n. Teniendo en cuenta de que ellas tienen un trastorno […]

Infusing Love: The Overwhelmed Mom

May 20, 2020

When I received Hemophilia Federation of America鈥檚 Infusing Love: A Mom鈥檚 Blog schedule back in January for this year鈥檚 blogs, I thought, 鈥淥k I have plenty of time to think and write the best blog yet for me.鈥 Wrong鈥 As the months went on, the craziness with my boys鈥 school and extracurricular activities and sports, […]

Infusing Love: Her Wild Man

May 13, 2020

Sometimes I feel that Maddox doesn鈥檛 even have hemophilia, because he鈥檚 such a wild man, and responds so well to his new medication. At first, we were so scared as a family to make the switch. Understanding that every family is different, we didn鈥檛 want to be swayed in the wrong direction. We have seen […]

Infusing Love: When The Time Comes

April 29, 2020

Our children face difficult things in their life on a daily basis. We teach them, we guide them and then pray it all works out. When they are little, we can control situations and speak for them when we believe we know our children better than anyone in the ER. We are the MOM! We […]

Infusing Love: Making Memories

April 22, 2020

  The Infusing Mom bloggers have a set schedule on when articles are due each week. As my date drew near, I believed I had my topic. I had been scrolling through my Facebook feed and noticing pictures of kids whose parents had captured the fun they had that day. My kids are older, and […]

Infusing Love: Prepared But Not Prepared

April 15, 2020

  As bleeding disorder parents, we are planners. We love to know what, how and when something is headed our way, and we will be prepared. We have been disaster relief preparing since day one. We have hospital/ER bags ready to go at a moment鈥檚 notice. Even during this age of smart phones, we have […]

Infusing Love: Sentirse Empoderado

April 1, 2020

Saludos a todas las madres que, como yo, tienen en su vida y en sus corazones una persona muy especial que llena sus d铆as de felicidad. Les contar茅 un poquito sobre mi vida. Crec铆 en una familia donde la hemofilia estaba en nuestro diario vivir. Esto me hizo ver la condici贸n como algo normal. Mi […]

Infusing Love: Transitioning from Teen to Adult

March 25, 2020

  I remember when Nick was much younger, we went to a meeting and one of the sessions was on transitioning from teen to adult. I remember thinking I didn鈥檛 need/want to go to that because we were nowhere near that time. I blinked and all of a sudden, we are at that time. And […]

Infusing Love: Back to Reality

March 19, 2020

There are times as a hemophilia parent where hemophilia is not at the forefront of your mind. Times where you can just live and enjoy every moment without worry. It鈥檚 almost as if hemophilia is a distant memory. You run on autopilot 鈥 not thinking, just doing. 聽\At these times hemophilia has absolutely no impact […]

Infusing Love: Durante la Adversidad

March 5, 2020

Hola a todas las lindas mamas de este blog, mi nombre es Lupe Torres, vivo en la ciudad de Las Vegas, NV. Soy mam谩 de tres hermosos hijos. Tengo una hija de 23 a帽os, un var贸n de 24 y mi m谩s peque帽o de 18 a帽os. Mi hija Michelle de 23 a帽os fue diagnosticada con VWD […]

Infusing Love: Camp Time

February 12, 2020

Even though I have never attended camp, and had no idea what it was all about, I did not want my son, my only child, to miss out on the experience. The first time Omar attended camp; he was just 7 years old. He looked so sad and didn鈥檛 want to stay, but we all […]

Infusing Love: D铆a de Acci贸n de Gracias en mi Hogar

February 5, 2020

The English version of this Infusing Love: A Mom’s View blog can be found below.聽   En Puerto rico se celebra el D铆a de Acci贸n de Gracias (Thanksgiving) al igual que en los Estados Unidos continentales. La verdad es que todos los d铆as festivos federales se celebran, pero 茅ste lo hemos 鈥渃riollizado鈥 en gran medida. […]


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