Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
It is a common refrain to hear medical professionals comment on how well Logan does with his infusions. This is usually echoed in a, 鈥淗e is such a champ,鈥 or 鈥淗ow did you get to be so brave,鈥 or the sadder version, 鈥淚 wish my older patients were this good.鈥 I am proud of Logan; […]
The reality is this: my Benny is not self-infusing yet. He is 12 and while he participates fully in the preparation of his infusions, the 鈥減oke鈥 is this huge mountain he doesn鈥檛 feel prepared to climb yet.聽 I鈥檒l access a vein, hand him the syringe to push his factor and even walk away as he […]
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