Category: Dateline

Multiple Trails. Many Locations. One Team.

Gears for Good National Bike Ride back in person By Meghan Lawton, HFA Associate Director, AdvancementWater bottles were full. Helmets were donned. Shoes were clicked in. It was time to saddle up.Hemophilia Federation of America’s (HFA’s) 2021 Gears for Good National Bike Ride was underway! September 17-19 marked the 12th edition of the annual bike-riding […]

HFA Hosts Dateline Live: Annual Product Guide Brought to Life

It was just before 4 p.m. when Hemophilia Federation of America (HFA) President and CEO Sharon Meyers, EdD, CFRE, turned on her webcam and tested her microphone in the organization’s office in Washington, DC. More than 1,500 miles away in her home state of Colorado, HFA Vice President of Policy and Advocacy Sonji Wilkes did […]

It's Ok to Be Sad

How I fight against hemophilia and depression. By Michael Bishop, staff writer and content design specialist for HFA’s Learning Central.I’ve been wanting to write this article for a few months now. It seems like the conversation surrounding mental health is one constantly being had in the hemophilia community, and even so, is the one we […]

HFA Focuses on Mental Health & Wellness in 2021

By Ann LeWalk, MA, HFA Vice President of Education In the best of times, people with bleeding disorders are at a greater risk of depression. However, during the COVID-19 pandemic, the isolating effects of a chronic disorder, coupled with the forced social distancing, has only magnified mental health issues in the bleeding disorders community. Recognizing the importance […]

Limits on Copay Assistance Can Threaten Families’ Financial Security

By HFA Policy and Advocacy Team, with assistance from an actuarial professional. For many in the bleeding disorders community, drug manufacturer copay assistance programs are a source of financial relief and the sole protection against perpetually high out-of-pocket health care costs. Unfortunately, health insurers, citing the need to curb medical inflation, are increasingly refusing to […]

A Look at FDA’s Gene and Cell Therapy Framework and its Impact on New Hemophilia Treatments in 2021 and Beyond

More cell and gene therapy products are being developed and entering clinical trials each year. The U.S. Food and Drug Administration plays a key role in overseeing drug development, including providing guidance and receiving investigational new drug applications or requests to start a new clinical trial submitted by drug developers. In 2021, there are more than […]

COVID-19 Vaccines Don't Stop Emerging Therapy Options for Those with Bleeding Disorders

By HFA Staff with scientific review by Dr. David Clark and Dr. Lisa HensleyMany people have questions about the COVID-19 vaccines. This article will answer one primary question: Can getting vaccinated for COVID-19 cut off treatment options for emerging bleeding disorder treatments and therapies? Of the three vaccines currently available in the United States, the […]

US Food and Drug Administration's Drug Approval Process

What is a Drug, as Defined by the FDA? A drug is any product that is intended for the use in the diagnosis, cure, mitigation, treatmentor prevention of disease and is intended to affect the structure or any function of the body. Pre-Clinical Drug Sponsor’s Discovery and Screening Phase: Drug sponsor develops a new drug […]

HFA’s Summer Internship Goes Virtual

Hemophilia Federation of America has welcomed two advocacy interns for the summer of 2020, but in a new and unique way. For many years, HFA’s advocacy interns spent 10 weeks of their summer living in Washington, D.C., where the HFA office is located, engaged in hands-on activities related to policy and advocacy. But with travel […]

Cornfields, Camping and Camaraderie

Nationally-known cycling event creates amazing memories for Team Resilience participants By: Emily Roush-Bobolz, Staff Writer While Hemophilia Federation of American has been hosting the Gears for Good National Ride from West Virginia to Washington, D.C., for eight years, the organization had a larger vision – use existing athletic and competitive events around the country to raise […]